2023-09-28 14:46:10 +00:00
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abstract: 'Evidence-based advocacy underpins the sustainable delivery of quality,
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publicly guaranteed, and universally available palliative care. More
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than 60 million people in low- and middle-income countries (LMICs) have
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no or extremely limited access to either palliative care services or
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essential palliative care medicines (e.g., opioids) on the World Health
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Organization Model List. Indeed, only 12\% of the global palliative care
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need is currently being met. Palliative care advocacy works to bring
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this global public health inequity to light. Despite their expertise,
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palliative care practitioners in LMICs are rarely invited to health
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policymaking tables - even in their own countries - and are
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underrepresented in the academic literature produced largely in the
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high-income world. In this paper, palliative care experts from
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Bangladesh, Colombia, Egypt, Sudan, Uganda, and Zambia affiliated with
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the International Association for Hospice \& Palliative Care Advocacy
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Focal Point Program articulate the urgent need for evidence-based
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advocacy, focusing on significant barriers such as urban/rural divides,
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cancer-centeredness, service delivery gaps, opioid formulary
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limitations, public policy, and education deficits. Their advocacy is
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situated in the context of an emerging global health narrative that
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stipulates palliative care provision as an ethical obligation of all
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health systems. To support advocacy efforts, palliative care evaluation
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and indicator data should assess the extent to which LMIC practitioners
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lead and participate in global and regional advocacy. This goal entails
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investment in transnational advocacy initiatives, research investments
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in palliative care access and cost-effective models in LMICs, and
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capacity building for a global community of practice to capture the
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attention of policymakers at all levels of health system governance. (c)
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2022 American Academy of Hospice and Palliative Medicine. Published by
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Elsevier Inc. All rights reserved.'
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affiliation: 'Rosa, WE (Corresponding Author), Mem Sloan Kettering Canc Ctr, Dept
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Psychiat \& Behav Sci, 641 Lexington Ave,7th Floor, New York, NY 10022 USA.
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Rosa, William E., Mem Sloan Kettering Canc Ctr, Dept Psychiat \& Behav Sci, New
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York, NY USA.
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Rosa, William E.; Knaul, Felicia Marie, Univ Miami, Inst Adv Study Amer, Coral Gables,
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FL USA.
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Ahmed, Ebtesam, St Johns Univ, Dept Clin Hlth Profess, Coll Pharm \& Hlth Sci, Queens,
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NY USA.
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Ahmed, Ebtesam, MJHS Inst Innovat Palliat Care, New York, NY USA.
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Chaila, Mwate Joseph, Catholic Relief Serv, Lusaka, Zambia.
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Chansa, Abidan, Minist Hlth, Natl Palliat Care Program, Lusaka, Zambia.
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Adelaida Cordoba, Maria, Fdn Hosp Pediat La Misericordia, Pediat Palliat Sect, Bogota,
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Colombia.
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Adelaida Cordoba, Maria, Hosp Univ Fdn Santa Fe Bogota, Dept Pediat, Bogota, Colombia.
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Dowla, Rumana, United Hosp, Palliat Med Canc Care Ctr, Dhaka, Bangladesh.
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Gafer, Nahla, Khartoum Oncol Hosp, Integrated Palliat \& Oncol Unit, Khartoum, Sudan.
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Khan, Farzana, Fasiuddin Khan Res Fdn, Dhaka, Bangladesh.
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Khan, Farzana, Univ Edinburgh, Global Hlth Acad, Edinburgh, Midlothian, Scotland.
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Namisango, Eve, African Palliat Care Assoc, Kampala, Uganda.
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Namisango, Eve, Kings Coll London, Cicely Saunders Inst, Dept Palliat Care \& Rehabil,
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London, England.
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Rodriguez, Luisa, Univ La Sabana, Dept Anesthesia Pain \& Palliat Med, Chia, Colombia.
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Rodriguez, Luisa, Asociac Colombiana Cuidados Paliat, Bogota, Colombia.
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Knaul, Felicia Marie, Univ Miami, Miller Sch Med, Dept Publ Hlth Sci, Miami, FL
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USA.
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Knaul, Felicia Marie, Tomatelo Pecho, Mexico City, DF, Mexico.
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Knaul, Felicia Marie, Fdn Mexicana Salud, Mexico City, DF, Mexico.
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Pettus, Katherine I., Int Assoc Hosp \& Palliat Care, Houston, TX USA.'
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author: Rosa, William E. and Ahmed, Ebtesam and Chaila, Mwate Joseph and Chansa, Abidan
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and Adelaida Cordoba, Maria and Dowla, Rumana and Gafer, Nahla and Khan, Farzana
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and Namisango, Eve and Rodriguez, Luisa and Knaul, Felicia Marie and Pettus, Katherine
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I.
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author-email: rosaw@mskcc.org
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author_list:
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- family: Rosa
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given: William E.
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- family: Ahmed
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given: Ebtesam
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- family: Chaila
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given: Mwate Joseph
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- family: Chansa
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given: Abidan
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- family: Adelaida Cordoba
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given: Maria
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- family: Dowla
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given: Rumana
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- family: Gafer
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given: Nahla
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- family: Khan
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given: Farzana
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- family: Namisango
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given: Eve
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- family: Rodriguez
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given: Luisa
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- family: Knaul
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given: Felicia Marie
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- family: Pettus
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given: Katherine I.
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da: '2023-09-28'
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doi: 10.1016/j.jpainsymman.2022.07.004
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eissn: 1873-6513
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files: []
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issn: 0885-3924
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journal: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
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keywords: 'Palliative care; hospice; global health; social justice; advocacy;
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policy; opioids; essential medicines; partnerships'
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keywords-plus: PARTNERSHIPS
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language: English
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month: OCT
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number: '4'
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number-of-cited-references: '48'
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orcid-numbers: 'Rodriguez Campos, Luisa Fernanda/0000-0002-0649-9119
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Cordoba Nunez, Maria Adelaida/0000-0001-8130-5647
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Gafer, Nahla/0000-0001-6291-093X'
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pages: E217-E226
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papis_id: 642069a816583718b9d81b85fc284dea
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ref: Rosa2022canyou
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times-cited: '3'
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title: Can You Hear Us Now? Equity in Global Advocacy for Palliative Care
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000888866900005
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usage-count-last-180-days: '8'
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usage-count-since-2013: '10'
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volume: '64'
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web-of-science-categories: 'Health Care Sciences \& Services; Medicine, General \&
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Internal;
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Clinical Neurology'
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year: '2022'
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