169 lines
5.4 KiB
YAML
169 lines
5.4 KiB
YAML
abstract: 'Evidence-based advocacy underpins the sustainable delivery of quality,
|
|
|
|
publicly guaranteed, and universally available palliative care. More
|
|
|
|
than 60 million people in low- and middle-income countries (LMICs) have
|
|
|
|
no or extremely limited access to either palliative care services or
|
|
|
|
essential palliative care medicines (e.g., opioids) on the World Health
|
|
|
|
Organization Model List. Indeed, only 12\% of the global palliative care
|
|
|
|
need is currently being met. Palliative care advocacy works to bring
|
|
|
|
this global public health inequity to light. Despite their expertise,
|
|
|
|
palliative care practitioners in LMICs are rarely invited to health
|
|
|
|
policymaking tables - even in their own countries - and are
|
|
|
|
underrepresented in the academic literature produced largely in the
|
|
|
|
high-income world. In this paper, palliative care experts from
|
|
|
|
Bangladesh, Colombia, Egypt, Sudan, Uganda, and Zambia affiliated with
|
|
|
|
the International Association for Hospice \& Palliative Care Advocacy
|
|
|
|
Focal Point Program articulate the urgent need for evidence-based
|
|
|
|
advocacy, focusing on significant barriers such as urban/rural divides,
|
|
|
|
cancer-centeredness, service delivery gaps, opioid formulary
|
|
|
|
limitations, public policy, and education deficits. Their advocacy is
|
|
|
|
situated in the context of an emerging global health narrative that
|
|
|
|
stipulates palliative care provision as an ethical obligation of all
|
|
|
|
health systems. To support advocacy efforts, palliative care evaluation
|
|
|
|
and indicator data should assess the extent to which LMIC practitioners
|
|
|
|
lead and participate in global and regional advocacy. This goal entails
|
|
|
|
investment in transnational advocacy initiatives, research investments
|
|
|
|
in palliative care access and cost-effective models in LMICs, and
|
|
|
|
capacity building for a global community of practice to capture the
|
|
|
|
attention of policymakers at all levels of health system governance. (c)
|
|
|
|
2022 American Academy of Hospice and Palliative Medicine. Published by
|
|
|
|
Elsevier Inc. All rights reserved.'
|
|
affiliation: 'Rosa, WE (Corresponding Author), Mem Sloan Kettering Canc Ctr, Dept
|
|
Psychiat \& Behav Sci, 641 Lexington Ave,7th Floor, New York, NY 10022 USA.
|
|
|
|
Rosa, William E., Mem Sloan Kettering Canc Ctr, Dept Psychiat \& Behav Sci, New
|
|
York, NY USA.
|
|
|
|
Rosa, William E.; Knaul, Felicia Marie, Univ Miami, Inst Adv Study Amer, Coral Gables,
|
|
FL USA.
|
|
|
|
Ahmed, Ebtesam, St Johns Univ, Dept Clin Hlth Profess, Coll Pharm \& Hlth Sci, Queens,
|
|
NY USA.
|
|
|
|
Ahmed, Ebtesam, MJHS Inst Innovat Palliat Care, New York, NY USA.
|
|
|
|
Chaila, Mwate Joseph, Catholic Relief Serv, Lusaka, Zambia.
|
|
|
|
Chansa, Abidan, Minist Hlth, Natl Palliat Care Program, Lusaka, Zambia.
|
|
|
|
Adelaida Cordoba, Maria, Fdn Hosp Pediat La Misericordia, Pediat Palliat Sect, Bogota,
|
|
Colombia.
|
|
|
|
Adelaida Cordoba, Maria, Hosp Univ Fdn Santa Fe Bogota, Dept Pediat, Bogota, Colombia.
|
|
|
|
Dowla, Rumana, United Hosp, Palliat Med Canc Care Ctr, Dhaka, Bangladesh.
|
|
|
|
Gafer, Nahla, Khartoum Oncol Hosp, Integrated Palliat \& Oncol Unit, Khartoum, Sudan.
|
|
|
|
Khan, Farzana, Fasiuddin Khan Res Fdn, Dhaka, Bangladesh.
|
|
|
|
Khan, Farzana, Univ Edinburgh, Global Hlth Acad, Edinburgh, Midlothian, Scotland.
|
|
|
|
Namisango, Eve, African Palliat Care Assoc, Kampala, Uganda.
|
|
|
|
Namisango, Eve, Kings Coll London, Cicely Saunders Inst, Dept Palliat Care \& Rehabil,
|
|
London, England.
|
|
|
|
Rodriguez, Luisa, Univ La Sabana, Dept Anesthesia Pain \& Palliat Med, Chia, Colombia.
|
|
|
|
Rodriguez, Luisa, Asociac Colombiana Cuidados Paliat, Bogota, Colombia.
|
|
|
|
Knaul, Felicia Marie, Univ Miami, Miller Sch Med, Dept Publ Hlth Sci, Miami, FL
|
|
USA.
|
|
|
|
Knaul, Felicia Marie, Tomatelo Pecho, Mexico City, DF, Mexico.
|
|
|
|
Knaul, Felicia Marie, Fdn Mexicana Salud, Mexico City, DF, Mexico.
|
|
|
|
Pettus, Katherine I., Int Assoc Hosp \& Palliat Care, Houston, TX USA.'
|
|
author: Rosa, William E. and Ahmed, Ebtesam and Chaila, Mwate Joseph and Chansa, Abidan
|
|
and Adelaida Cordoba, Maria and Dowla, Rumana and Gafer, Nahla and Khan, Farzana
|
|
and Namisango, Eve and Rodriguez, Luisa and Knaul, Felicia Marie and Pettus, Katherine
|
|
I.
|
|
author-email: rosaw@mskcc.org
|
|
author_list:
|
|
- family: Rosa
|
|
given: William E.
|
|
- family: Ahmed
|
|
given: Ebtesam
|
|
- family: Chaila
|
|
given: Mwate Joseph
|
|
- family: Chansa
|
|
given: Abidan
|
|
- family: Adelaida Cordoba
|
|
given: Maria
|
|
- family: Dowla
|
|
given: Rumana
|
|
- family: Gafer
|
|
given: Nahla
|
|
- family: Khan
|
|
given: Farzana
|
|
- family: Namisango
|
|
given: Eve
|
|
- family: Rodriguez
|
|
given: Luisa
|
|
- family: Knaul
|
|
given: Felicia Marie
|
|
- family: Pettus
|
|
given: Katherine I.
|
|
da: '2023-09-28'
|
|
doi: 10.1016/j.jpainsymman.2022.07.004
|
|
eissn: 1873-6513
|
|
files: []
|
|
issn: 0885-3924
|
|
journal: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
|
|
keywords: 'Palliative care; hospice; global health; social justice; advocacy;
|
|
|
|
policy; opioids; essential medicines; partnerships'
|
|
keywords-plus: PARTNERSHIPS
|
|
language: English
|
|
month: OCT
|
|
number: '4'
|
|
number-of-cited-references: '48'
|
|
orcid-numbers: 'Rodriguez Campos, Luisa Fernanda/0000-0002-0649-9119
|
|
|
|
Cordoba Nunez, Maria Adelaida/0000-0001-8130-5647
|
|
|
|
Gafer, Nahla/0000-0001-6291-093X'
|
|
pages: E217-E226
|
|
papis_id: 642069a816583718b9d81b85fc284dea
|
|
ref: Rosa2022canyou
|
|
times-cited: '3'
|
|
title: Can You Hear Us Now? Equity in Global Advocacy for Palliative Care
|
|
type: article
|
|
unique-id: WOS:000888866900005
|
|
usage-count-last-180-days: '8'
|
|
usage-count-since-2013: '10'
|
|
volume: '64'
|
|
web-of-science-categories: 'Health Care Sciences \& Services; Medicine, General \&
|
|
Internal;
|
|
|
|
Clinical Neurology'
|
|
year: '2022'
|