wow-inequalities/02-data/intermediate/wos_sample/50f19a979601ccb3c2f70fb395851dd2-bindley-kristin-and/info.yaml

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2023-09-28 14:46:10 +00:00
abstract: 'An individual and psychological emphasis has influenced practice and
research on bereavement following informal care provision in the context
of life-limiting illness. Consideration of the potential for bereavement
to be shaped by intersecting social and structural inequities is needed;
and should include an understanding of interactions with government
institutions and social policy. This qualitative study employed
interpretive description to explore the way in which palliative care
workers and welfare sector workers perceive and approach experiences and
needs of bereaved carers receiving government income support or housing
assistance in Western Sydney, an area associated with recognised
socioeconomic disadvantage. A total of 21 palliative care workers within
a public health service and welfare workers from two government social
welfare services participated in in-depth interviews. Data were analysed
using framework analysis. Participants highlighted social welfare policy
and related interactions that may impact bereavement, potentially
related to financial, housing and employment precariousness. Personal,
interpersonal and structural factors perceived to shape the navigation
of welfare needs were explored, alongside needed professional and
structural changes envisioned by workers. With limited forms of capital,
vulnerably positioned carers may encounter difficulties that heighten
their precariousness in bereavement. Transactional organisational
cultures alongside health and welfare agencies that function in a siloed
manner appear to contribute to structural burden for carers, following
death due to life-limiting illness. Palliative care and welfare workers
also associated elements of their work with bereaved carers with their
own experiences of helplessness, frustration and distress. Findings
point to a need for the development of interagency strategies in
addition to policy underpinned by more nuanced understandings of
vulnerability in bereavement, post-caring.'
affiliation: 'Bindley, K (Corresponding Author), Univ Technol Sydney, Fac Hlth, 235
Jones St, Ultimo, NSW 2007, Australia.
Bindley, Kristin; Lewis, Joanne; Travaglia, Joanne; DiGiacomo, Michelle, Univ Technol
Sydney, Fac Hlth, 235 Jones St, Ultimo, NSW 2007, Australia.
Bindley, Kristin, Western Sydney Local Hlth Dist, Support \& Palliat Care, Mt Druitt,
NSW, Australia.'
author: Bindley, Kristin and Lewis, Joanne and Travaglia, Joanne and DiGiacomo, Michelle
author_list:
- family: Bindley
given: Kristin
- family: Lewis
given: Joanne
- family: Travaglia
given: Joanne
- family: DiGiacomo
given: Michelle
da: '2023-09-28'
doi: 10.1111/hsc.13339
earlyaccessdate: MAR 2021
eissn: 1365-2524
files: []
issn: 0966-0410
journal: HEALTH \& SOCIAL CARE IN THE COMMUNITY
keywords: bereavement; family carers; palliative care; social welfare
keywords-plus: 'OF-LIFE CARE; INTERPRETIVE DESCRIPTION; HEALTH; END; PERSPECTIVES;
EXPERIENCE; DEATH; CHALLENGES; CAREGIVERS; CANCER'
language: English
month: MAY
number: '3'
number-of-cited-references: '56'
orcid-numbers: 'Bindley, Kristin/0000-0003-1408-2484
Travaglia, Joanne/0000-0002-7537-0466
Lewis, Joanne/0000-0001-8668-712X'
pages: 631-642
papis_id: a441e6a4917865bd44aed6b27ea19e48
ref: Bindley2021socialwelfare
researcherid-numbers: 'Bindley, Kristin/AAN-2441-2021
'
times-cited: '2'
title: 'Social welfare needs of bereaved Australian carers: Implications of insights
from palliative care and welfare workers'
2023-10-01 08:15:07 +00:00
type: article
2023-09-28 14:46:10 +00:00
unique-id: WOS:000627461700001
usage-count-last-180-days: '0'
usage-count-since-2013: '17'
volume: '29'
web-of-science-categories: Public, Environmental \& Occupational Health; Social Work
year: '2021'