abstract: 'An individual and psychological emphasis has influenced practice and

  research on bereavement following informal care provision in the context

  of life-limiting illness. Consideration of the potential for bereavement

  to be shaped by intersecting social and structural inequities is needed;

  and should include an understanding of interactions with government

  institutions and social policy. This qualitative study employed

  interpretive description to explore the way in which palliative care

  workers and welfare sector workers perceive and approach experiences and

  needs of bereaved carers receiving government income support or housing

  assistance in Western Sydney, an area associated with recognised

  socioeconomic disadvantage. A total of 21 palliative care workers within

  a public health service and welfare workers from two government social

  welfare services participated in in-depth interviews. Data were analysed

  using framework analysis. Participants highlighted social welfare policy

  and related interactions that may impact bereavement, potentially

  related to financial, housing and employment precariousness. Personal,

  interpersonal and structural factors perceived to shape the navigation

  of welfare needs were explored, alongside needed professional and

  structural changes envisioned by workers. With limited forms of capital,

  vulnerably positioned carers may encounter difficulties that heighten

  their precariousness in bereavement. Transactional organisational

  cultures alongside health and welfare agencies that function in a siloed

  manner appear to contribute to structural burden for carers, following

  death due to life-limiting illness. Palliative care and welfare workers

  also associated elements of their work with bereaved carers with their

  own experiences of helplessness, frustration and distress. Findings

  point to a need for the development of interagency strategies in

  addition to policy underpinned by more nuanced understandings of

  vulnerability in bereavement, post-caring.'
affiliation: 'Bindley, K (Corresponding Author), Univ Technol Sydney, Fac Hlth, 235
  Jones St, Ultimo, NSW 2007, Australia.

  Bindley, Kristin; Lewis, Joanne; Travaglia, Joanne; DiGiacomo, Michelle, Univ Technol
  Sydney, Fac Hlth, 235 Jones St, Ultimo, NSW 2007, Australia.

  Bindley, Kristin, Western Sydney Local Hlth Dist, Support \& Palliat Care, Mt Druitt,
  NSW, Australia.'
author: Bindley, Kristin and Lewis, Joanne and Travaglia, Joanne and DiGiacomo, Michelle
author_list:
- family: Bindley
  given: Kristin
- family: Lewis
  given: Joanne
- family: Travaglia
  given: Joanne
- family: DiGiacomo
  given: Michelle
da: '2023-09-28'
doi: 10.1111/hsc.13339
earlyaccessdate: MAR 2021
eissn: 1365-2524
files: []
issn: 0966-0410
journal: HEALTH \& SOCIAL CARE IN THE COMMUNITY
keywords: bereavement; family carers; palliative care; social welfare
keywords-plus: 'OF-LIFE CARE; INTERPRETIVE DESCRIPTION; HEALTH; END; PERSPECTIVES;

  EXPERIENCE; DEATH; CHALLENGES; CAREGIVERS; CANCER'
language: English
month: MAY
number: '3'
number-of-cited-references: '56'
orcid-numbers: 'Bindley, Kristin/0000-0003-1408-2484

  Travaglia, Joanne/0000-0002-7537-0466

  Lewis, Joanne/0000-0001-8668-712X'
pages: 631-642
papis_id: a441e6a4917865bd44aed6b27ea19e48
ref: Bindley2021socialwelfare
researcherid-numbers: 'Bindley, Kristin/AAN-2441-2021

  '
times-cited: '2'
title: 'Social welfare needs of bereaved Australian carers: Implications of insights
  from palliative care and welfare workers'
type: article
unique-id: WOS:000627461700001
usage-count-last-180-days: '0'
usage-count-since-2013: '17'
volume: '29'
web-of-science-categories: Public, Environmental \& Occupational Health; Social Work
year: '2021'