117 lines
3.7 KiB
YAML
117 lines
3.7 KiB
YAML
abstract: 'Purpose - The purpose of this paper is to describe how clinical
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registers were designed and used to serve multiple purposes in three
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health systems, in order to contribute practical experience for building
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learning healthcare systems.
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Design/methodology/approach - Case description and comparison of the
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development and use of clinical registries, drawing on participants''
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experience and published and unpublished research.
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Findings - Clinical registers and new software systems enable fact-based
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decisions by patients, clinicians, and managers about better care, as
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well as new and more economical research. Designing systems to present
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the data for users'' daily work appears to be the key to effective use of
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the potential afforded by digital data.
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Research limitations/implications - The case descriptions draw on the
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experience of the authors who were involved in the development of the
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registers, as well as on published and unpublished research. There is
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limited data about outcomes for patients or cost-effectiveness.
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Practical implications - The cases show the significant investments
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which are needed to make effective use of clinical register data. There
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are limited skills to design and apply the digital systems to make the
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best use of the systems and to reduce their disadvantages. More use can
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be made of digital data for quality improvement, patient empowerment and
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support, and for research.
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Social implications - Patients can use their data combined with other
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data to self-manage their chronic conditions. There are challenges in
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designing and using systems so that those with lower health and computer
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literacy and incomes also benefit from these systems, otherwise the
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digital revolution may increase health inequalities.
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Originality/value - The paper shows three real examples of clinical
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registers which have been developed as part of their host health
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systems'' strategies to develop learning healthcare systems. The paper
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gives a simple non-technical introduction and overview for clinicians,
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managers, policy-advisors and improvers of what is possible and the
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challenges, and highlights the need to shape the design and
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implementation of digital infrastructures in healthcare services to
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serve users.'
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affiliation: 'Ovretveit, J (Corresponding Author), Karolinska Inst, LIME MMC, Stockholm,
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Sweden.
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Ovretveit, John, Karolinska Inst, LIME MMC, Stockholm, Sweden.
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Nelson, Eugene, Dartmouth Coll, Dartmouth Inst, Hanover, NH USA.
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James, Brent, Intermt Healthcare, Inst Healthcare Delivery Res, Salt Lake City,
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UT USA.'
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author: Ovretveit, John and Nelson, Eugene and James, Brent
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author-email: jovretbis@aol.com
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author_list:
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- family: Ovretveit
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given: John
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- family: Nelson
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given: Eugene
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- family: James
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given: Brent
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da: '2023-09-28'
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doi: 10.1108/JHOM-06-2016-0110
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eissn: 1758-7247
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files: []
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issn: 1477-7266
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journal: JOURNAL OF HEALTH ORGANIZATION AND MANAGEMENT
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keywords: 'Information technology; Quality improvement; Safety; Healthcare; Health
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information technology; Learning health system; Clinical registers'
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keywords-plus: 'INFORMATION EXCHANGE; PATIENT-CARE; QUALITY; TECHNOLOGY; IMPROVE;
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REGISTRIES'
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language: English
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number: '7'
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number-of-cited-references: '45'
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orcid-numbers: ovretveit, john/0000-0002-5177-6613
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pages: 1105-1118
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papis_id: ed3b9cd9507496d3502d8ac6c44b9e5c
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ref: Ovretveit2016buildinglearning
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times-cited: '25'
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title: 'Building a learning health system using clinical registers: a non-technical
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introduction'
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type: Article
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unique-id: WOS:000387176300005
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usage-count-last-180-days: '0'
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usage-count-since-2013: '10'
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volume: '30'
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web-of-science-categories: Health Policy \& Services
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year: '2016'
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