wow-inequalities/02-data/intermediate/wos_sample/2b352a645825067b54865680607f83df-kazis-lewis-e.-and/info.yaml

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abstract: 'Measuring the impact burn injuries have on social participation is
integral to understanding and improving survivors'' quality of life, yet
there are no existing instruments that comprehensively measure the
social participation of burn survivors. This project aimed to develop
the Life Impact Burn Recovery Evaluation Profile (LIBRE), a
patient-reported multidimensional assessment for understanding the
social participation after burn injuries.
192 questions representing multiple social participation areas were
administered to a convenience sample of 601 burn survivors. Exploratory
factor analysis and confirmatory factor analysis (CFA) were used to
identify the underlying structure of the data. Using item response
theory methods, a Graded Response Model was applied for each identified
sub-domain. The resultant multidimensional LIBRE Profile can be
administered via Computerized Adaptive Testing (CAT) or fixed short
forms.
The study sample included 54.7\% women with a mean age of 44.6 (SD 15.9)
years. The average time since burn injury was 15.4 years (0-74 years)
and the average total body surface area burned was 40\% (1-97\%). The
CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI
range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional
scales were named: relationships with family and friends, social
interactions, social activities, work and employment, romantic
relationships, and sexual relationships. The marginal reliability of the
full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects
less than 15\% for all scales.
The LIBRE Profile is a promising new measure of social participation
following a burn injury that enables burn survivors and their care
providers to measure social participation.'
affiliation: 'Marino, M (Corresponding Author), Boston Univ, Sch Publ Hlth, Hlth \&
Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.
Kazis, Lewis E.; Bori, Marina Soley; Amaya, Flor; Dore, Emily, Boston Univ, Sch
Publ Hlth, CAPP, Dept Hlth Law Policy \& Management, Boston, MA USA.
Marino, Molly; Ni, Pengsheng; Jette, Alan M., Boston Univ, Sch Publ Hlth, Hlth \&
Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.
Ryan, Colleen M., Massachusetts Gen Hosp, Dept Surg, Boston, MA 02114 USA.
Ryan, Colleen M.; Schneider, Jeff C., Harvard Med Sch, Boston, MA USA.
Ryan, Colleen M., Shriners Hosp Children Boston, Boston, MA USA.
Schneider, Jeff C.; Shie, Vivian, Spaulding Rehabil Hosp, Dept Phys Med \& Rehabil,
Boston, MA USA.
Acton, Amy, Phoenix Soc Burn Survivors, Grand Rapids, MI USA.'
author: Kazis, Lewis E. and Marino, Molly and Ni, Pengsheng and Bori, Marina Soley
and Amaya, Flor and Dore, Emily and Ryan, Colleen M. and Schneider, Jeff C. and
Shie, Vivian and Acton, Amy and Jette, Alan M.
author-email: memarino@bu.edu
author_list:
- family: Kazis
given: Lewis E.
- family: Marino
given: Molly
- family: Ni
given: Pengsheng
- family: Bori
given: Marina Soley
- family: Amaya
given: Flor
- family: Dore
given: Emily
- family: Ryan
given: Colleen M.
- family: Schneider
given: Jeff C.
- family: Shie
given: Vivian
- family: Acton
given: Amy
- family: Jette
given: Alan M.
da: '2023-09-28'
doi: 10.1007/s11136-017-1588-3
eissn: 1573-2649
files: []
issn: 0962-9343
journal: QUALITY OF LIFE RESEARCH
keywords: 'Item response theory; Computerized adaptive test; Burns; Social
reintegration'
keywords-plus: 'ITEM RESPONSE THEORY; QUALITY-OF-LIFE; OUTCOMES MEASUREMENT;
HEALTH-STATUS; INJURY; ADJUSTMENT; RETURN; WORK; BARRIERS; TIME'
language: English
month: OCT
number: '10'
number-of-cited-references: '47'
orcid-numbers: 'Marino, Molly/0000-0002-9978-3038
Soley-Bori, Marina/0000-0002-8348-3575
Ryan, Colleen/0000-0002-6455-936X'
pages: 2851-2866
papis_id: 66f0f253787a851747a8033d5e4eed25
ref: Kazis2017developmentlife
researcherid-numbers: 'Baldissera, Annalisa/AHD-6334-2022
'
times-cited: '28'
title: 'Development of the life impact burn recovery evaluation (LIBRE) profile: assessing
burn survivors'' social participation'
2023-10-01 08:15:07 +00:00
type: article
2023-09-28 14:46:10 +00:00
unique-id: WOS:000410904700023
usage-count-last-180-days: '0'
usage-count-since-2013: '3'
volume: '26'
web-of-science-categories: 'Health Care Sciences \& Services; Health Policy \& Services;
Public,
Environmental \& Occupational Health'
year: '2017'