wow-inequalities/02-data/intermediate/wos_sample/576b26fd8306a60fdd7c8a41d89f9e9b-ovretveit-john-and/info.yaml

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abstract: 'Purpose - The purpose of this paper is to describe how clinical
registers were designed and used to serve multiple purposes in three
health systems, in order to contribute practical experience for building
learning healthcare systems.
Design/methodology/approach - Case description and comparison of the
development and use of clinical registries, drawing on participants''
experience and published and unpublished research.
Findings - Clinical registers and new software systems enable fact-based
decisions by patients, clinicians, and managers about better care, as
well as new and more economical research. Designing systems to present
the data for users'' daily work appears to be the key to effective use of
the potential afforded by digital data.
Research limitations/implications - The case descriptions draw on the
experience of the authors who were involved in the development of the
registers, as well as on published and unpublished research. There is
limited data about outcomes for patients or cost-effectiveness.
Practical implications - The cases show the significant investments
which are needed to make effective use of clinical register data. There
are limited skills to design and apply the digital systems to make the
best use of the systems and to reduce their disadvantages. More use can
be made of digital data for quality improvement, patient empowerment and
support, and for research.
Social implications - Patients can use their data combined with other
data to self-manage their chronic conditions. There are challenges in
designing and using systems so that those with lower health and computer
literacy and incomes also benefit from these systems, otherwise the
digital revolution may increase health inequalities.
Originality/value - The paper shows three real examples of clinical
registers which have been developed as part of their host health
systems'' strategies to develop learning healthcare systems. The paper
gives a simple non-technical introduction and overview for clinicians,
managers, policy-advisors and improvers of what is possible and the
challenges, and highlights the need to shape the design and
implementation of digital infrastructures in healthcare services to
serve users.'
affiliation: 'Ovretveit, J (Corresponding Author), Karolinska Inst, LIME MMC, Stockholm,
Sweden.
Ovretveit, John, Karolinska Inst, LIME MMC, Stockholm, Sweden.
Nelson, Eugene, Dartmouth Coll, Dartmouth Inst, Hanover, NH USA.
James, Brent, Intermt Healthcare, Inst Healthcare Delivery Res, Salt Lake City,
UT USA.'
author: Ovretveit, John and Nelson, Eugene and James, Brent
author-email: jovretbis@aol.com
author_list:
- family: Ovretveit
given: John
- family: Nelson
given: Eugene
- family: James
given: Brent
da: '2023-09-28'
doi: 10.1108/JHOM-06-2016-0110
eissn: 1758-7247
files: []
issn: 1477-7266
journal: JOURNAL OF HEALTH ORGANIZATION AND MANAGEMENT
keywords: 'Information technology; Quality improvement; Safety; Healthcare; Health
information technology; Learning health system; Clinical registers'
keywords-plus: 'INFORMATION EXCHANGE; PATIENT-CARE; QUALITY; TECHNOLOGY; IMPROVE;
REGISTRIES'
language: English
number: '7'
number-of-cited-references: '45'
orcid-numbers: ovretveit, john/0000-0002-5177-6613
pages: 1105-1118
papis_id: ed3b9cd9507496d3502d8ac6c44b9e5c
ref: Ovretveit2016buildinglearning
times-cited: '25'
title: 'Building a learning health system using clinical registers: a non-technical
introduction'
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type: article
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unique-id: WOS:000387176300005
usage-count-last-180-days: '0'
usage-count-since-2013: '10'
volume: '30'
web-of-science-categories: Health Policy \& Services
year: '2016'