wow-inequalities/02-data/intermediate/wos_sample/b62a1d4221ac322f6862360d46140c77-tasseron-dries-petr/info.yaml

164 lines
5.6 KiB
YAML
Raw Normal View History

2023-09-28 14:46:10 +00:00
abstract: 'Background: Family caregivers may experience difficulty maintaining
meaningful contact with a relative with advanced dementia. Nevertheless,
some family caregivers prefer to remain involved in the care of their
relative after admission to a nursing home. Family involvement in the
care is important but little is known about how this works in practice
and what exactly is needed to improve it. Objectives: To examine
experiences of family caregivers, staff and volunteers with family
caregiver participation in the Namaste Care Family program, a
psychosocial intervention to increase quality of life for people with
advanced dementia that may help family caregivers to connect with their
relative. Further, we aimed to examine facilitators of and barriers to
family participation. Design: Descriptive exploratory qualitative design
using semi-structured interviews. Setting: Ten nursing homes in the
Netherlands. Participants: Ten family caregivers, 31 staff members and 2
volunteers who participated in the Namaste Care Family Program. Methods:
Qualitative interview study using thematic analysis. Interviews were
held with family caregivers, staff members, and volunteers about their
experiences with the Namaste Care Family program. Results: In general,
family caregivers experienced their involvement in the Namaste Care
Family program as positive, particularly the meaningful connections with
their relative. However, putting family involvement into practice was
challenging. We identified three themes covering facilitators for and
barriers to participation: (1) Preferences of family caregivers for
activities with their relative (Activities): practical activities
matching one''s own interests were seen as facilitating, while perceived
lack of knowledge and reluctance to engage with other residents were
barriers. (2) Communication between family caregivers, staff and
volunteers (Communication): providing clear information about the
program to family caregivers facilitated their involvement. Feeling
insecure inhibited family involvement. (3) Personal context of family
caregivers (Personal circumstances): feeling fulfillment and being
appreciated facilitated involvement. Older age, having a family of their
own, a job and complex family relations were barriers to family
caregiver involvement. Conclusion: To optimize family involvement, it is
important to adopt a family-centered approach and provide training and
guidance. Making a personal, comprehensive plan with family caregivers
and offering them guidance can help them overcome their uncertainty and
remove barriers to being more involved with a care program aiming to
improve the quality of life of their relative. Also recommended is
training for staff to improve communication with family caregivers. The
Namaste study is registered with the Netherlands Trial Register
(NTR5692). (c) 2021 The Author(s). Published by Elsevier Ltd. This is an
open access article under the CC BY-NC-ND license (
http://creativecommons.org/licenses/by-nc-nd/4.0/ )'
affiliation: 'van der Steen, JT (Corresponding Author), Leiden Univ, Med Ctr, Dept
Publ Hlth \& Primary Care, Hippocratespad 21,Gebouw 3,Postal Zone V0-P, NL-2300
RC Leiden, Netherlands.
Tasseron-Dries, Petra E. M.; Smaling, Hanneke J. A.; Achterberg, Wilco P.; van der
Steen, Jenny T., Leiden Univ, Med Ctr, Dept Publ Hlth \& Primary Care, Hippocratespad
21,Gebouw 3,Postal Zone V0-P, NL-2300 RC Leiden, Netherlands.
Tasseron-Dries, Petra E. M., Stichting Warande Nursing Home Org, Postbus 185, NL-3700
AD Zeist, Netherlands.
Smaling, Hanneke J. A.; Doncker, Sarah M. M. M.; van der Steen, Jenny T., Vrije
Univ Amsterdam, Med Ctr, Amsterdam Publ Hlth Res Inst, Dept Publ \& Occupat Hlth,
Boelelaan 1117, NL-1081 HV Amsterdam, Netherlands.
Doncker, Sarah M. M. M., Amsterdam UMC, Locat AMC, Dept Med Psychol, Meibergdreef
9, NL-1105 AZ Amsterdam, Netherlands.'
article-number: '103968'
author: Tasseron-Dries, Petra E. M. and Smaling, Hanneke J. A. and Doncker, Sarah
M. M. M. and Achterberg, Wilco P. and van der Steen, Jenny T.
author-email: 'P.E.M.Tasseron@LUMC.nl
H.J.A.Smaling@lumc.nl
S.Doncker@amsterdamumc.nl
W.P.Achterberg@lumc.nl
JTvandersteen@lumc.nl'
author_list:
- family: Tasseron-Dries
given: Petra E. M.
- family: Smaling
given: Hanneke J. A.
- family: Doncker
given: Sarah M. M. M.
- family: Achterberg
given: Wilco P.
- family: van der Steen
given: Jenny T.
da: '2023-09-28'
doi: 10.1016/j.ijnurstu.2021.103968
earlyaccessdate: JUL 2021
eissn: 1873-491X
files: []
issn: 0020-7489
journal: INTERNATIONAL JOURNAL OF NURSING STUDIES
keywords: 'Dementia; Experiences; Family caregivers; Nursing home; Quality of life;
Family involvement; Qualitative research'
keywords-plus: 'OLDER-PEOPLE; CAREGIVERS; RESIDENTS; RELATIVES; COMMUNICATION;
INTERVENTION; WORKING'
language: English
month: SEP
number-of-cited-references: '41'
orcid-numbers: 'van der Steen, Jenny T./0000-0002-9063-7501
Achterberg, Wilco/0000-0001-9227-7135
Smaling, Hanneke/0000-0002-7836-431X'
papis_id: 388db41a26eae79a0361c1140a69d86c
ref: Tasserondries2021familyinvolvement
researcherid-numbers: 'van der Steen, Jenny T./E-5118-2016
Smaling, Hanneke/Y-7412-2018'
times-cited: '10'
title: 'Family involvement in the Namaste care family program for dementia: A qualitative
study on experiences of family, nursing home staff, and volunteers'
2023-10-01 08:15:07 +00:00
type: article
2023-09-28 14:46:10 +00:00
unique-id: WOS:000685438800009
usage-count-last-180-days: '5'
usage-count-since-2013: '29'
volume: '121'
web-of-science-categories: Nursing
year: '2021'