2023-09-28 14:46:10 +00:00
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abstract: 'Neuromyelitis optica spectrum disorder (NMOSD) is a rare and disabling
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neurological disorder, marked by recurrent attacks of the central
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nervous system. NMO has a high female predominance and
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disproportionately affects racial and ethnic groups who are under- and
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unemployed in the USA. Three focus groups, involving 20 working age
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adults with NMOSD in the USA, were convened via Zoom online, to discuss
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the topic of employment in NMOSD. Consolidated Criteria for Reporting
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Qualitative research (COREQ) were followed. Discussions were coded for
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major themes using an inductive approach. The following themes emerged:
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(1) Barriers due to NMOSD on employment including (i) visible and
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invisible symptoms, (ii) the burden of treatment, and (iii) time to
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diagnosis; (2) Mitigating factors when NMOSD affects employment; (3)
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Impact of COVID-19; (4) Impact on income; (5) Impact on new and future
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employment and higher education opportunities; and (6) Unmet needs that
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are pragmatically addressable, outside of major policy or scientific
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changes.'
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affiliation: 'Mateen, FJ (Corresponding Author), Harvard Med Sch, Massachusetts Gen
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Hosp, Boston, MA 02115 USA.
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Mateen, Farrah J.; Hacker, Cristina Trapaga M., Harvard Med Sch, Massachusetts Gen
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Hosp, Boston, MA 02115 USA.'
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article-number: '1142640'
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author: Mateen, Farrah J. and Hacker, Cristina Trapaga M.
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author-email: fmateen@mgh.harvard.edu
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author_list:
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- family: Mateen
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given: Farrah J.
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- family: Hacker
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given: Cristina Trapaga M.
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da: '2023-09-28'
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doi: 10.3389/fneur.2023.1142640
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files: []
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issn: 1664-2295
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journal: FRONTIERS IN NEUROLOGY
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keywords: 'neuromyelitis optica (NMO); employment; unemployment; disability;
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outcomes; qualitative research'
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keywords-plus: JOB LOSS; WORK
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language: English
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month: MAR 9
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number-of-cited-references: '13'
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papis_id: 074b28fbc08220c1d84eb86157efc8e5
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ref: Mateen2023understandingemploym
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times-cited: '0'
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title: 'Understanding the employment impact of neuromyelitis optica spectrum disorder
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in the USA: Mixed methods'
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000954587800001
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usage-count-last-180-days: '0'
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usage-count-since-2013: '0'
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volume: '14'
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web-of-science-categories: Clinical Neurology; Neurosciences
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year: '2023'
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