2023-09-28 14:46:10 +00:00
|
|
|
abstract: 'OBJECTIVE: Children of color and from low-income families experience
|
|
|
|
|
|
|
|
disparities in hospital care and outcomes. This study examined the
|
|
|
|
|
|
|
|
experiences of parents and providers who participated in a novel patient
|
|
|
|
|
|
|
|
navigation program designed to address these disparities.
|
|
|
|
|
|
|
|
METHODS: Between April and October 2018, we conducted semistructured
|
|
|
|
|
|
|
|
interviews with parents enrolled in the Family Bridge navigation pilot
|
|
|
|
|
|
|
|
study, and inpatient care providers. Each set of interviews was
|
|
|
|
|
|
|
|
thematically coded and analyzed according to the Realist Evaluation
|
|
|
|
|
|
|
|
Framework of context, mechanism and outcomes; to identify how and when
|
|
|
|
|
|
|
|
the program worked, for whom, and with what results.
|
|
|
|
|
|
|
|
RESULTS: Of 60 parents enrolled in the intervention, 50 (83\%) completed
|
|
|
|
|
|
|
|
an interview. All enrolled children had public insurance; 66\% were
|
|
|
|
|
|
|
|
Hispanic, 24\% were non-Hispanic Black, and 36\% of parents preferred
|
|
|
|
|
|
|
|
Spanish for communication. Of 23 providers who completed an interview,
|
|
|
|
|
|
|
|
16 (70\%) were attending physicians. Parents identified 4 contexts
|
|
|
|
|
|
|
|
influencing intervention effectiveness: past clinical experience,
|
|
|
|
|
|
|
|
barriers to communication, access to resources, and timing of
|
|
|
|
|
|
|
|
intervention delivery. Four mechanisms were identified by both parents
|
|
|
|
|
|
|
|
and providers: emotional support, information collection and sharing,
|
|
|
|
|
|
|
|
facilitating communication, and addressing unmet social needs.
|
|
|
|
|
|
|
|
Parent-level outcomes included improved communication, feeling
|
|
|
|
|
|
|
|
supported, and increased parental knowledge surrounding the child''s care
|
|
|
|
|
|
|
|
and the health system. Provider-level outcomes included providing
|
|
|
|
|
|
|
|
tailored communication and attending to family nonmedical needs.
|
|
|
|
|
|
|
|
CONCLUSIONS: This study provided insight into the mechanisms by which an
|
|
|
|
|
|
|
|
inpatient navigation program may improve communication, support, and
|
|
|
|
|
|
|
|
knowledge for parents of low-income children of color, both directly and
|
|
|
|
|
|
|
|
by changing provider behavior.'
|
|
|
|
affiliation: 'Chisholm, H (Corresponding Author), Yale Univ, Sch Publ Hlth, Dept Social
|
|
|
|
\& Behav Sci, 60 Coll St, New Haven, CT 06510 USA.
|
|
|
|
|
|
|
|
Chisholm, Hillary; Kershaw, Trace, Yale Univ, Sch Publ Hlth, Dept Social \& Behav
|
|
|
|
Sci, 60 Coll St, New Haven, CT 06510 USA.
|
|
|
|
|
|
|
|
Chisholm, Hillary, MGH Inst Hlth Profess, Sch Nursing, Boston, MA USA.
|
|
|
|
|
|
|
|
Guerra, Laura Sotelo; Bocek, Kevin; Garcia, Yesenia; Lion, K. Casey, Seattle Childrens
|
|
|
|
Res Inst, Ctr Child Hlth Behav \& Dev, Seattle, WA USA.
|
|
|
|
|
|
|
|
Lion, K. Casey, Univ Washington, Seattle Childrens Hosp, Dept Pediat, Sch Med, Seattle,
|
|
|
|
WA USA.'
|
|
|
|
author: Chisholm, Hillary and Kershaw, Trace and Guerra, Laura Sotelo and Bocek, Kevin
|
|
|
|
and Garcia, Yesenia and Lion, K. Casey
|
|
|
|
author-email: hchisholm@mghihp.edu
|
|
|
|
author_list:
|
|
|
|
- family: Chisholm
|
|
|
|
given: Hillary
|
|
|
|
- family: Kershaw
|
|
|
|
given: Trace
|
|
|
|
- family: Guerra
|
|
|
|
given: Laura Sotelo
|
|
|
|
- family: Bocek
|
|
|
|
given: Kevin
|
|
|
|
- family: Garcia
|
|
|
|
given: Yesenia
|
|
|
|
- family: Lion
|
|
|
|
given: K. Casey
|
|
|
|
da: '2023-09-28'
|
|
|
|
eissn: 1876-2867
|
|
|
|
files: []
|
|
|
|
issn: 1876-2859
|
|
|
|
journal: ACADEMIC PEDIATRICS
|
|
|
|
keywords: 'emotional support; low-income/minority; patient-centered communication;
|
|
|
|
|
|
|
|
patient navigation; pediatric hospital medicine'
|
|
|
|
keywords-plus: ETHNIC DISPARITIES; CARE; HEALTH
|
|
|
|
language: English
|
|
|
|
month: JUL
|
|
|
|
number: '5'
|
|
|
|
number-of-cited-references: '26'
|
|
|
|
orcid-numbers: 'Chisholm, Hillary/0000-0002-3946-4641
|
|
|
|
|
|
|
|
Lion, K. Casey/0000-0002-7718-7462
|
|
|
|
|
|
|
|
Sotelo Guerra, Laura/0000-0002-8456-8220
|
|
|
|
|
|
|
|
Bocek, Kevin/0000-0003-3574-2429'
|
|
|
|
pages: 789-796
|
|
|
|
papis_id: 3d6369c6bf8bb82d48bc30dcb2249087
|
|
|
|
ref: Chisholm2022realistevaluation
|
|
|
|
times-cited: '1'
|
|
|
|
title: A Realist Evaluation Analysis of a Novel Multi-Faceted Inpatient Patient Navigation
|
|
|
|
Program
|
2023-10-01 08:15:07 +00:00
|
|
|
type: article
|
2023-09-28 14:46:10 +00:00
|
|
|
unique-id: WOS:000877504000013
|
|
|
|
usage-count-last-180-days: '0'
|
|
|
|
usage-count-since-2013: '0'
|
|
|
|
volume: '22'
|
|
|
|
web-of-science-categories: Pediatrics
|
|
|
|
year: '2022'
|