2023-09-28 14:46:10 +00:00
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abstract: 'Objective: An enormous need for pediatric palliative care (PPC) has been
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reported, especially in low- and middle-income countries (LMICs).
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However, the access to PPC is limited. This study identifies the current
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challenges in the provision of PPC and their severity from the
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perspective of healthcare professionals. Method: We conducted a
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web-based descriptive cross-sectional survey among healthcare
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professionals treating children in need of palliative care in Mexico in
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2019. We used convenience sampling and snowball sampling to acquire
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participants. Results: Seventy healthcare professionals from Mexico
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participated. Participants were 64.3\% female, on average 45.8 (SD =
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10.9) years old, had an average of 15.84 (SD = 10.4) years of work
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experience and worked in 15 states. The three most severe barriers
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reported were: (1) Few teams and/or networks of out-of-hospital/domestic
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support; (2) Absence of training centres and continuing
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medical/paramedical education in PPC; and (3) Lack of legal, labor, and
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economic protection for parents who must stop working to be with their
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children. The barriers related to a lack of awareness and commitment, a
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lack of support, legal factors, and working conditions were rated
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highest. Participants considered increased awareness and better
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knowledge of PPC for all as the top priority, and particularly
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emphasized the need for better education and training of health
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professionals. Conclusion: We have identified several barriers to
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successful palliative care (PC) provision for children. Primarily, these
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are lack of awareness and commitment, especially of the health
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authorities and the medical professions, lack of personal and financial
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support, legal factors, and working conditions. The need to change and
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improve care exists at the policy level, the health professional level,
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and the public societal level.'
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affiliation: 'Gruneberg, ES (Corresponding Author), Rhein Westfal TH Aachen, Med Fac,
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Dept Palliat Med, Seefeld 32, D-23843 Bad Oldesloe, Germany.
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Grueneberg, Elena Solveig; Pastrana, Tania, Rhein Westfal TH Aachen, Aachen, Germany.
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Ramos-Guerrero, Jorge, Univ Guadalajara, Jalisco, Mexico.'
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article-number: 08258597211062767
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author: Grueneberg, Elena Solveig and Ramos-Guerrero, Jorge and Pastrana, Tania
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author-email: elena.grueneberg@rwth-aachen.de
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author_list:
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- family: Grueneberg
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given: Elena Solveig
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- family: Ramos-Guerrero
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given: Jorge
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- family: Pastrana
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given: Tania
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da: '2023-09-28'
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doi: 10.1177/08258597211062767
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earlyaccessdate: DEC 2021
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eissn: 2369-5293
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files: []
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issn: 0825-8597
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journal: JOURNAL OF PALLIATIVE CARE
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keywords: 'health services accessibility; pediatric palliative care; Mexico;
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children; adolescent; barrier; challenge; low- and middle-income
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countries'
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keywords-plus: CHILDREN; CANCER; NEED; DISPARITIES; ARGENTINA; SERVICES; ACCESS
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language: English
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month: 2021 DEC 13
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number-of-cited-references: '31'
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orcid-numbers: Pastrana, Tania/0000-0002-1294-9657
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papis_id: 0b1083308075a295bfcf1e48578a942c
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ref: Grueneberg2021challengesprovision
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researcherid-numbers: Pastrana, Tania/W-5069-2017
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times-cited: '0'
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title: 'Challenges in the Provision of Pediatric Palliative Care in Mexico: A Cross-Sectional
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Web-Based Survey'
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000730360900001
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usage-count-last-180-days: '0'
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usage-count-since-2013: '0'
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web-of-science-categories: 'Health Care Sciences \& Services; Health Policy \& Services;
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Public,
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Environmental \& Occupational Health'
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year: '2021'
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