2023-09-28 14:46:10 +00:00
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abstract: 'An individual and psychological emphasis has influenced practice and
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research on bereavement following informal care provision in the context
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of life-limiting illness. Consideration of the potential for bereavement
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to be shaped by intersecting social and structural inequities is needed;
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and should include an understanding of interactions with government
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institutions and social policy. This qualitative study employed
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interpretive description to explore the way in which palliative care
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workers and welfare sector workers perceive and approach experiences and
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needs of bereaved carers receiving government income support or housing
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assistance in Western Sydney, an area associated with recognised
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socioeconomic disadvantage. A total of 21 palliative care workers within
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a public health service and welfare workers from two government social
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welfare services participated in in-depth interviews. Data were analysed
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using framework analysis. Participants highlighted social welfare policy
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and related interactions that may impact bereavement, potentially
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related to financial, housing and employment precariousness. Personal,
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interpersonal and structural factors perceived to shape the navigation
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of welfare needs were explored, alongside needed professional and
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structural changes envisioned by workers. With limited forms of capital,
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vulnerably positioned carers may encounter difficulties that heighten
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their precariousness in bereavement. Transactional organisational
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cultures alongside health and welfare agencies that function in a siloed
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manner appear to contribute to structural burden for carers, following
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death due to life-limiting illness. Palliative care and welfare workers
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also associated elements of their work with bereaved carers with their
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own experiences of helplessness, frustration and distress. Findings
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point to a need for the development of interagency strategies in
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addition to policy underpinned by more nuanced understandings of
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vulnerability in bereavement, post-caring.'
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affiliation: 'Bindley, K (Corresponding Author), Univ Technol Sydney, Fac Hlth, 235
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Jones St, Ultimo, NSW 2007, Australia.
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Bindley, Kristin; Lewis, Joanne; Travaglia, Joanne; DiGiacomo, Michelle, Univ Technol
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Sydney, Fac Hlth, 235 Jones St, Ultimo, NSW 2007, Australia.
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Bindley, Kristin, Western Sydney Local Hlth Dist, Support \& Palliat Care, Mt Druitt,
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NSW, Australia.'
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author: Bindley, Kristin and Lewis, Joanne and Travaglia, Joanne and DiGiacomo, Michelle
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author_list:
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- family: Bindley
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given: Kristin
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- family: Lewis
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given: Joanne
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- family: Travaglia
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given: Joanne
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- family: DiGiacomo
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given: Michelle
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da: '2023-09-28'
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doi: 10.1111/hsc.13339
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earlyaccessdate: MAR 2021
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eissn: 1365-2524
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files: []
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issn: 0966-0410
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journal: HEALTH \& SOCIAL CARE IN THE COMMUNITY
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keywords: bereavement; family carers; palliative care; social welfare
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keywords-plus: 'OF-LIFE CARE; INTERPRETIVE DESCRIPTION; HEALTH; END; PERSPECTIVES;
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EXPERIENCE; DEATH; CHALLENGES; CAREGIVERS; CANCER'
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language: English
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month: MAY
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number: '3'
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number-of-cited-references: '56'
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orcid-numbers: 'Bindley, Kristin/0000-0003-1408-2484
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Travaglia, Joanne/0000-0002-7537-0466
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Lewis, Joanne/0000-0001-8668-712X'
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pages: 631-642
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papis_id: a441e6a4917865bd44aed6b27ea19e48
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ref: Bindley2021socialwelfare
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researcherid-numbers: 'Bindley, Kristin/AAN-2441-2021
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'
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times-cited: '2'
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title: 'Social welfare needs of bereaved Australian carers: Implications of insights
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from palliative care and welfare workers'
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000627461700001
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usage-count-last-180-days: '0'
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usage-count-since-2013: '17'
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volume: '29'
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web-of-science-categories: Public, Environmental \& Occupational Health; Social Work
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year: '2021'
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