2023-09-28 14:46:10 +00:00
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abstract: 'Measuring the impact burn injuries have on social participation is
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integral to understanding and improving survivors'' quality of life, yet
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there are no existing instruments that comprehensively measure the
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social participation of burn survivors. This project aimed to develop
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the Life Impact Burn Recovery Evaluation Profile (LIBRE), a
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patient-reported multidimensional assessment for understanding the
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social participation after burn injuries.
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192 questions representing multiple social participation areas were
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administered to a convenience sample of 601 burn survivors. Exploratory
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factor analysis and confirmatory factor analysis (CFA) were used to
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identify the underlying structure of the data. Using item response
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theory methods, a Graded Response Model was applied for each identified
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sub-domain. The resultant multidimensional LIBRE Profile can be
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administered via Computerized Adaptive Testing (CAT) or fixed short
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forms.
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The study sample included 54.7\% women with a mean age of 44.6 (SD 15.9)
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years. The average time since burn injury was 15.4 years (0-74 years)
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and the average total body surface area burned was 40\% (1-97\%). The
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CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI
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range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional
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scales were named: relationships with family and friends, social
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interactions, social activities, work and employment, romantic
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relationships, and sexual relationships. The marginal reliability of the
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full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects
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less than 15\% for all scales.
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The LIBRE Profile is a promising new measure of social participation
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following a burn injury that enables burn survivors and their care
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providers to measure social participation.'
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affiliation: 'Marino, M (Corresponding Author), Boston Univ, Sch Publ Hlth, Hlth \&
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Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.
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Kazis, Lewis E.; Bori, Marina Soley; Amaya, Flor; Dore, Emily, Boston Univ, Sch
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Publ Hlth, CAPP, Dept Hlth Law Policy \& Management, Boston, MA USA.
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Marino, Molly; Ni, Pengsheng; Jette, Alan M., Boston Univ, Sch Publ Hlth, Hlth \&
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Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.
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Ryan, Colleen M., Massachusetts Gen Hosp, Dept Surg, Boston, MA 02114 USA.
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Ryan, Colleen M.; Schneider, Jeff C., Harvard Med Sch, Boston, MA USA.
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Ryan, Colleen M., Shriners Hosp Children Boston, Boston, MA USA.
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Schneider, Jeff C.; Shie, Vivian, Spaulding Rehabil Hosp, Dept Phys Med \& Rehabil,
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Boston, MA USA.
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Acton, Amy, Phoenix Soc Burn Survivors, Grand Rapids, MI USA.'
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author: Kazis, Lewis E. and Marino, Molly and Ni, Pengsheng and Bori, Marina Soley
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and Amaya, Flor and Dore, Emily and Ryan, Colleen M. and Schneider, Jeff C. and
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Shie, Vivian and Acton, Amy and Jette, Alan M.
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author-email: memarino@bu.edu
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author_list:
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- family: Kazis
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given: Lewis E.
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- family: Marino
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given: Molly
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- family: Ni
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given: Pengsheng
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- family: Bori
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given: Marina Soley
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- family: Amaya
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given: Flor
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- family: Dore
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given: Emily
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- family: Ryan
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given: Colleen M.
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- family: Schneider
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given: Jeff C.
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- family: Shie
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given: Vivian
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- family: Acton
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given: Amy
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- family: Jette
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given: Alan M.
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da: '2023-09-28'
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doi: 10.1007/s11136-017-1588-3
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eissn: 1573-2649
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files: []
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issn: 0962-9343
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journal: QUALITY OF LIFE RESEARCH
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keywords: 'Item response theory; Computerized adaptive test; Burns; Social
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reintegration'
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keywords-plus: 'ITEM RESPONSE THEORY; QUALITY-OF-LIFE; OUTCOMES MEASUREMENT;
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HEALTH-STATUS; INJURY; ADJUSTMENT; RETURN; WORK; BARRIERS; TIME'
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language: English
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month: OCT
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number: '10'
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number-of-cited-references: '47'
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orcid-numbers: 'Marino, Molly/0000-0002-9978-3038
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Soley-Bori, Marina/0000-0002-8348-3575
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Ryan, Colleen/0000-0002-6455-936X'
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pages: 2851-2866
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papis_id: 66f0f253787a851747a8033d5e4eed25
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ref: Kazis2017developmentlife
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researcherid-numbers: 'Baldissera, Annalisa/AHD-6334-2022
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'
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times-cited: '28'
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title: 'Development of the life impact burn recovery evaluation (LIBRE) profile: assessing
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burn survivors'' social participation'
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000410904700023
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usage-count-last-180-days: '0'
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usage-count-since-2013: '3'
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volume: '26'
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web-of-science-categories: 'Health Care Sciences \& Services; Health Policy \& Services;
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Public,
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Environmental \& Occupational Health'
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year: '2017'
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