2023-09-28 14:46:10 +00:00
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abstract: 'Objective: To explore generalist palliative care providers'' experiences
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of emotional labour when undertaking conversations around palliative and
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end-of-life care with patients and families, to inform supportive
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strategies.
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Methods: Semi-structured interviews conducted with generalist staff
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(those providing `primary'' or `general'' palliative care, not palliative
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care specialists) who had attended a communication workshop. Sampling
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was purposive (by gender, profession, experience). Data were analysed
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using a framework approach; a sample of transcripts were double-coded
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for rigour. Data collection and analysis were informed by theories of
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emotional labour, coping, and communication.
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Results: Four ambulance staff, three nurses, two speech and language
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therapists, and one therapy assistant were interviewed. Five themes
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emerged: emotions experienced; emotion `display rules''; emotion
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management; support needs; and perceived impact of emotional labour.
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Participants reported balancing `human'' and `professional'' expressions
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of emotion. Support needs included time for emotion management,
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workplace cultures that normalise emotional experiences, formal
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emotional support, and palliative and end-of-life care skills training.
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Conclusion: Diverse strategies to support the emotional needs of
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generalist staff are crucial to ensure high-quality end-of-life care and
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communication, and to support staff well-being.
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Practice implications: Both formal and informal support is required,
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alongside skills training, to enable a supportive workplace culture and
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individual development. (C) 2018 Elsevier B.V. All rights reserved.'
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affiliation: 'Brighton, LJ (Corresponding Author), Kings Coll London, Cicely Saunders
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Inst Palliat Care Policy \& Rehabi, Bessemer Rd, London SE5 9PJ, England.
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Brighton, Lisa Jane; Bristowe, Katherine; Edwards, Beth; Koffman, Jonathan; Evans,
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Catherine J., Kings Coll London, Cicely Saunders Inst Palliat Care Policy \& Rehabi,
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Bessemer Rd, London SE5 9PJ, England.
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Selman, Lucy Ellen, Univ Bristol, Bristol Med Sch, Populat Hlth Sci, Bristol, Avon,
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England.
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Evans, Catherine J., Brighton Gen Hosp, Sussex Community NHS Fdn Trust, Brighton,
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E Sussex, England.'
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author: Brighton, Lisa Jane and Selman, Lucy Ellen and Bristowe, Katherine and Edwards,
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Beth and Koffman, Jonathan and Evans, Catherine J.
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author-email: 'lisa.brighton@kcl.ac.uk
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lucy.selman@bristol.ac.uk
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katherine.bristowe@kcl.ac.uk
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bethany.edwards@kcl.ac.uk
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jonathan.koffman@kcl.ac.uk
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catherine.evans@kcl.ac.uk'
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author_list:
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- family: Brighton
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given: Lisa Jane
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- family: Selman
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given: Lucy Ellen
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- family: Bristowe
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given: Katherine
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- family: Edwards
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given: Beth
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- family: Koffman
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given: Jonathan
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- family: Evans
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given: Catherine J.
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da: '2023-09-28'
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doi: 10.1016/j.pec.2018.10.013
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eissn: 1873-5134
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files: []
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issn: 0738-3991
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journal: PATIENT EDUCATION AND COUNSELING
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keywords: 'Emotions; Communication; Education; Terminal care; Palliative care;
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Qualitative research'
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keywords-plus: 'CANCER CARE; STRESSORS; INTERVENTIONS; PERSPECTIVES; STRATEGIES;
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BARRIERS; EFFICACY; BURNOUT; SKILLS; WORK'
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language: English
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month: MAR
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number: '3'
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number-of-cited-references: '66'
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orcid-numbers: 'Evans, Catherine J/0000-0003-0034-7402
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Brighton, Lisa J/0000-0003-0516-0102
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Brighton, Lisa Jane/0000-0003-0516-0102
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Selman, Lucy/0000-0001-5747-2699
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Edwards, Beth/0000-0001-7742-4432
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Koffman, Jonathan/0000-0001-8513-5681
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Bristowe, Katherine Rachel/0000-0003-1809-217X'
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pages: 494-502
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papis_id: 37a9e18b66f164d8a0906da441f4a81d
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ref: Brighton2019emotionallabour
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researcherid-numbers: 'Evans, Catherine J/AAS-4121-2020
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Bristowe, Katherine R/G-4807-2012
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Brighton, Lisa J/M-1632-2014
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Brighton, Lisa Jane/AAF-9119-2019
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Selman, Lucy/C-4373-2014
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'
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times-cited: '27'
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title: 'Emotional labour in palliative and end-of-life care communication: A qualitative
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study with generalist palliative care providers'
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2023-10-01 08:15:07 +00:00
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type: article
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2023-09-28 14:46:10 +00:00
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unique-id: WOS:000461039100013
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usage-count-last-180-days: '0'
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usage-count-since-2013: '39'
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volume: '102'
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web-of-science-categories: 'Public, Environmental \& Occupational Health; Social Sciences,
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Interdisciplinary'
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year: '2019'
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