147 lines
4.8 KiB
YAML
147 lines
4.8 KiB
YAML
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abstract: 'Plain English summary Patient-reported outcomes (PROs) allow doctors and
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researchers to understand the patient perspective, such as how they are
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doing physically, mentally, or socially. When used, PROs can improve
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health and increase satisfaction of patients. Many clinics and hospitals
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are interested in using PROs in everyday care. Doctors, hospitals, and
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insurance companies are also using information from PROs to decide if
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the care they give is good quality. Unfortunately, certain groups of
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patients, such as racial and ethnic minorities and patients with low
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income, report worse PROs. Because of these differences, it will be
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important to make sure that PROs are being collected from all people,
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but not much is known regarding how this has been done. This study
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demonstrates what is known so far with regard to using PROs in everyday
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clinical care for these diverse patient groups. Findings from this study
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show that PROs can be successfully collected, but more work is needed in
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certain medical fields, and some types of patients have specific needs,
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concerns, or preferences with regard to PRO collection.
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Background Patient-reported outcomes (PROs) are used increasingly in
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routine clinical care and inform policies, reimbursements, and quality
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improvement. Less is known regarding PRO implementation in routine
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clinical care for diverse and underrepresented patient populations.
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Objective This review aims to identify studies of PRO implementation in
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diverse and underrepresented patient populations, elucidate
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representation of clinical specialties, assess implementation outcomes,
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and synthesize patient needs, concerns, and preferences. Methods
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MEDLINE, Embase, Web of Science, CINAHL, and PsycINFO were searched
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September 2021 for studies aiming to study PRO implementation in diverse
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and underrepresented patient populations within the United States.
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Studies were screened and data extracted by three independent reviewers.
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Implementation outcomes were assessed according to Proctor et al.
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taxonomy. A descriptive analysis of data was conducted. Results The
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search yielded 8,687 records, and 28 studies met inclusion criteria. The
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majority were observational cohort studies (n = 21, 75\%) and conducted
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in primary care (n = 10, 36\%). Most studies included majority female (n
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= 19, 68\%) and non-White populations (n = 15, 54\%), while fewer
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reported socioeconomic (n = 11, 39\%) or insurance status (n = 9,
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32.1\%). Most studies assessed implementation outcomes of feasibility (n
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= 27, 96\%) and acceptability (n = 19, 68\%); costs (n = 3, 11\%),
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penetration (n = 1, 4\%), and sustainability (n = 1, 4\%) were
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infrequently assessed. Conclusion PRO implementation in routine clinical
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care for diverse and underrepresented patient populations is generally
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feasible and acceptable. Research is lacking in key clinical
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specialties. Further work is needed to understand how health disparities
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drive PRO implementation outcomes.'
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affiliation: 'Hyland, CJ (Corresponding Author), Harvard Med Sch, Brigham \& Womens
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Hosp, Boston, MA 02115 USA.
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Hyland, Colby J.; Guo, Ruby; Kaur, Manraj N.; Edelen, Maria O.; Pusic, Andrea L.,
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Harvard Med Sch, Brigham \& Womens Hosp, Boston, MA 02115 USA.
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Dhawan, Ravi, Brigham \& Womens Hosp, Harvard Sch Publ Hlth, 75 Francis St, Boston,
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MA 02115 USA.
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Bain, Paul A., Harvard Med Sch, Countway Lib, Boston, MA 02115 USA.'
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article-number: '20'
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author: Hyland, Colby J. and Guo, Ruby and Dhawan, Ravi and Kaur, Manraj N. and Bain,
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Paul A. and Edelen, Maria O. and Pusic, Andrea L.
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author-email: colby.hyland@gmail.com
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author_list:
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- family: Hyland
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given: Colby J.
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- family: Guo
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given: Ruby
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- family: Dhawan
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given: Ravi
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- family: Kaur
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given: Manraj N.
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- family: Bain
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given: Paul A.
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- family: Edelen
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given: Maria O.
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- family: Pusic
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given: Andrea L.
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da: '2023-09-28'
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doi: 10.1186/s41687-022-00428-z
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eissn: 2509-8020
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files: []
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journal: JOURNAL OF PATIENT-REPORTED OUTCOMES
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keywords: 'Patient-reported outcome; Patient-reported outcome measure; PRO; PROM;
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Clinical care; Implementation; Diverse; Underrepresented patient
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population'
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keywords-plus: 'SOCIAL DETERMINANTS; HEALTH-CARE; DISPARITIES; DEPRESSION; IMPACT;
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COLLECTION; LESSONS; BURDEN; ADULTS; TRIAL'
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language: English
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month: MAR 7
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number: '1'
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number-of-cited-references: '74'
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orcid-numbers: Hyland, Colby/0000-0002-9150-0144
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papis_id: dbdcbe5c626ea2d1bd405da04adc9dce
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ref: Hyland2022implementingpatientr
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tags:
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- review
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times-cited: '4'
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title: Implementing patient-reported outcomes in routine clinical care for diverse
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and underrepresented patients in the United States
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type: Review
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unique-id: WOS:000765775000002
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usage-count-last-180-days: '0'
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usage-count-since-2013: '3'
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volume: '6'
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web-of-science-categories: Health Care Sciences \& Services; Health Policy \& Services
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year: '2022'
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