164 lines
5.6 KiB
YAML
164 lines
5.6 KiB
YAML
abstract: 'Background: Family caregivers may experience difficulty maintaining
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meaningful contact with a relative with advanced dementia. Nevertheless,
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some family caregivers prefer to remain involved in the care of their
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relative after admission to a nursing home. Family involvement in the
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care is important but little is known about how this works in practice
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and what exactly is needed to improve it. Objectives: To examine
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experiences of family caregivers, staff and volunteers with family
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caregiver participation in the Namaste Care Family program, a
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psychosocial intervention to increase quality of life for people with
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advanced dementia that may help family caregivers to connect with their
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relative. Further, we aimed to examine facilitators of and barriers to
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family participation. Design: Descriptive exploratory qualitative design
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using semi-structured interviews. Setting: Ten nursing homes in the
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Netherlands. Participants: Ten family caregivers, 31 staff members and 2
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volunteers who participated in the Namaste Care Family Program. Methods:
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Qualitative interview study using thematic analysis. Interviews were
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held with family caregivers, staff members, and volunteers about their
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experiences with the Namaste Care Family program. Results: In general,
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family caregivers experienced their involvement in the Namaste Care
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Family program as positive, particularly the meaningful connections with
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their relative. However, putting family involvement into practice was
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challenging. We identified three themes covering facilitators for and
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barriers to participation: (1) Preferences of family caregivers for
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activities with their relative (Activities): practical activities
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matching one''s own interests were seen as facilitating, while perceived
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lack of knowledge and reluctance to engage with other residents were
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barriers. (2) Communication between family caregivers, staff and
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volunteers (Communication): providing clear information about the
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program to family caregivers facilitated their involvement. Feeling
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insecure inhibited family involvement. (3) Personal context of family
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caregivers (Personal circumstances): feeling fulfillment and being
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appreciated facilitated involvement. Older age, having a family of their
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own, a job and complex family relations were barriers to family
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caregiver involvement. Conclusion: To optimize family involvement, it is
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important to adopt a family-centered approach and provide training and
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guidance. Making a personal, comprehensive plan with family caregivers
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and offering them guidance can help them overcome their uncertainty and
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remove barriers to being more involved with a care program aiming to
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improve the quality of life of their relative. Also recommended is
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training for staff to improve communication with family caregivers. The
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Namaste study is registered with the Netherlands Trial Register
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(NTR5692). (c) 2021 The Author(s). Published by Elsevier Ltd. This is an
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open access article under the CC BY-NC-ND license (
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http://creativecommons.org/licenses/by-nc-nd/4.0/ )'
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affiliation: 'van der Steen, JT (Corresponding Author), Leiden Univ, Med Ctr, Dept
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Publ Hlth \& Primary Care, Hippocratespad 21,Gebouw 3,Postal Zone V0-P, NL-2300
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RC Leiden, Netherlands.
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Tasseron-Dries, Petra E. M.; Smaling, Hanneke J. A.; Achterberg, Wilco P.; van der
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Steen, Jenny T., Leiden Univ, Med Ctr, Dept Publ Hlth \& Primary Care, Hippocratespad
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21,Gebouw 3,Postal Zone V0-P, NL-2300 RC Leiden, Netherlands.
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Tasseron-Dries, Petra E. M., Stichting Warande Nursing Home Org, Postbus 185, NL-3700
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AD Zeist, Netherlands.
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Smaling, Hanneke J. A.; Doncker, Sarah M. M. M.; van der Steen, Jenny T., Vrije
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Univ Amsterdam, Med Ctr, Amsterdam Publ Hlth Res Inst, Dept Publ \& Occupat Hlth,
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Boelelaan 1117, NL-1081 HV Amsterdam, Netherlands.
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Doncker, Sarah M. M. M., Amsterdam UMC, Locat AMC, Dept Med Psychol, Meibergdreef
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9, NL-1105 AZ Amsterdam, Netherlands.'
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article-number: '103968'
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author: Tasseron-Dries, Petra E. M. and Smaling, Hanneke J. A. and Doncker, Sarah
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M. M. M. and Achterberg, Wilco P. and van der Steen, Jenny T.
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author-email: 'P.E.M.Tasseron@LUMC.nl
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H.J.A.Smaling@lumc.nl
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S.Doncker@amsterdamumc.nl
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W.P.Achterberg@lumc.nl
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JTvandersteen@lumc.nl'
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author_list:
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- family: Tasseron-Dries
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given: Petra E. M.
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- family: Smaling
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given: Hanneke J. A.
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- family: Doncker
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given: Sarah M. M. M.
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- family: Achterberg
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given: Wilco P.
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- family: van der Steen
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given: Jenny T.
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da: '2023-09-28'
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doi: 10.1016/j.ijnurstu.2021.103968
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earlyaccessdate: JUL 2021
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eissn: 1873-491X
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files: []
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issn: 0020-7489
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journal: INTERNATIONAL JOURNAL OF NURSING STUDIES
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keywords: 'Dementia; Experiences; Family caregivers; Nursing home; Quality of life;
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Family involvement; Qualitative research'
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keywords-plus: 'OLDER-PEOPLE; CAREGIVERS; RESIDENTS; RELATIVES; COMMUNICATION;
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INTERVENTION; WORKING'
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language: English
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month: SEP
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number-of-cited-references: '41'
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orcid-numbers: 'van der Steen, Jenny T./0000-0002-9063-7501
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Achterberg, Wilco/0000-0001-9227-7135
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Smaling, Hanneke/0000-0002-7836-431X'
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papis_id: 388db41a26eae79a0361c1140a69d86c
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ref: Tasserondries2021familyinvolvement
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researcherid-numbers: 'van der Steen, Jenny T./E-5118-2016
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Smaling, Hanneke/Y-7412-2018'
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times-cited: '10'
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title: 'Family involvement in the Namaste care family program for dementia: A qualitative
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study on experiences of family, nursing home staff, and volunteers'
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type: article
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unique-id: WOS:000685438800009
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usage-count-last-180-days: '5'
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usage-count-since-2013: '29'
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volume: '121'
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web-of-science-categories: Nursing
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year: '2021'
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