163 lines
5.6 KiB
YAML
163 lines
5.6 KiB
YAML
abstract: 'Introduction. - The INDIGO study (INternational study of Discrimination
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and stiGma Outcomes) aims at assessing the impact of schizophrenic
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disorders diagnosis on privacy, social and professional life, in terms
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of discrimination. In the general population, and even among health and
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social professionals, erroneous negative stereotypes (double
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personality, dangerosity) lead to high social distance. And this has an
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impact on various parts of daily life: employment, housing, compliance,
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self-esteem... About a tenth of the adult population suffers from mental
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disorders at any one time. These disorders now account for about 12\% of
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the global impact of disability, and this will rise to 15\% by the year
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2020. People living with schizophrenia, for example, experience reduced
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social participation, whilst public images of mental illness and social
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reactions add a dimension of suffering, which has been described as a
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``second illness{''''}. Stigmatizing attitudes and discriminatory behavior
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among the general population against people with severe mental illness
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are common in all countries. Globally, little is known of effective
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interventions against stigma. It is clear that the negative effects of
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stigma can act as formidable barriers to active recovery.
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Methodology. - The INDIGO study intends to establish detailed
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international data on how stigma and discrimination affect the lives of
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people with a diagnosis of schizophrenia. The first aim of the INDIGO
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study is to conduct qualitative and quantitative interviews with 25
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people with a diagnosis of schizophrenia in each participating site, to
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elicit information on how the condition affects their everyday lives,
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with a focus upon sites in Europe. The second is to gather data for all
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participating countries on the laws, policies and regulations which set
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a clear distinction between people with a diagnosis of mental illness
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and others, to establish an international profile of such
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discrimination. A new scale (Discrimination and Stigma Scale {[}DISC]),
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used in a face-to-face setting was developed. Interviewers asked service
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users to comment on how far their mental disorder has affected key areas
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of their lives, including work, marriage and partnerships, housing,
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leisure, and religious activities. For country-level information, staff
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at each national site gathered the best available data on whether
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special legal, policy or administrative arrangements are made for people
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with a diagnosis of mental illness. These items included, for example,
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information on access to insurance, financial services, driving
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licenses, voting, jury service, or travel visas. The INDIGO study is
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conducted within the framework of the WPA global program to fight stigma
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and discrimination because of schizophrenia. French interviews occurred
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in two sites (Lille and Nice) on a sample of 25 patients.
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Results. - First, expressed disadvantages are high for several items
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(all relations, work and training, housing). In addition, we wish to
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highlight three specific points: almost half of the participants (46\%)
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suffer from not being respected because of contacts with services, 88\%
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of them felt rejected by people who know their diagnosis, and 76\%
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hide/conceal their diagnosis. Positive experienced discrimination was
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rare. Two thirds of participants anticipated discrimination for job
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seeking and close personal relationships, sometimes with no experienced
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discrimination.
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Conclusions. - This study, one of the rare in France adopting the point
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of view of a stigmatized group, revealed the numerous impacts of a
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diagnosis of schizophrenic disorders on everyday life. Comparisons
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between French and international results confirmed that the situation is
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not different in France, and even highlighted the extent of the
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stigmatization in the country. (C) L''Encephale, Paris, 2011.'
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affiliation: 'Bacle, SV (Corresponding Author), Ctr Collaborateur Org Mondiale Sante
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Rech \& Forma, Lille, France.
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Daumerie, N.; Bacle, S. Vasseur; Caria, A.; Roelandt, J. -L., Ctr Collaborateur
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Org Mondiale Sante Rech \& Forma, Lille, France.
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Daumerie, N.; Bacle, S. Vasseur; Caria, A.; Roelandt, J. -L., CCOMS EPSM Lille Metropole,
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F-59370 Mons En Baroeul, France.
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Giordana, J. -Y., Ctr Hosp St Marie, F-06009 Nice, France.
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Mannone, C. Bourdais, Ctr Hosp Univ Nice, DIIM, Cimiez, F-06000 Nice, France.'
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author: Daumerie, N. and Bacle, S. Vasseur and Giordana, J. -Y. and Mannone, C. Bourdais
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and Caria, A. and Roelandt, J. -L.
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author-email: svasseurbacle@epsm-lille-metropole.fr
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author_list:
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- family: Daumerie
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given: N.
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- family: Bacle
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given: S. Vasseur
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- family: Giordana
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given: J. -Y.
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- family: Mannone
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given: C. Bourdais
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- family: Caria
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given: A.
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- family: Roelandt
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given: J. -L.
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da: '2023-09-28'
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doi: 10.1016/j.encep.2011.06.007
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files: []
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issn: 0013-7006
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journal: ENCEPHALE-REVUE DE PSYCHIATRIE CLINIQUE BIOLOGIQUE ET THERAPEUTIQUE
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keywords: Schizophrenic disorders; Stigma; Discrimination; Self stigma; Exclusion
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keywords-plus: MENTAL-ILLNESS; SOCIAL DISTANCE; CONSEQUENCES; DEPRESSION
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language: French
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month: JUN
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number: '3'
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number-of-cited-references: '25'
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pages: 224-231
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papis_id: bd6ce73144ea05b5e302ca3e6cb8b5e5
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ref: Daumerie2012discriminationpercei
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times-cited: '28'
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title: 'Discrimination perceived by people with a diagnosis of schizophrenic disorders.
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INtemational study of Discrimination and stiGma Outcomes (INDIGO): French results'
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type: article
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unique-id: WOS:000306267900005
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usage-count-last-180-days: '1'
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usage-count-since-2013: '40'
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volume: '38'
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web-of-science-categories: Neurosciences; Psychiatry
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year: '2012'
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