abstract: 'Background: Adults with CHD have reduced work participation rates compared to adults without CHD. We aimed to quantify employment rate among adult CHD patients in a population-based registry and to describe factors and barriers associated with work participation. Methods: We retrospectively identified adults with employment information in the North Carolina Congenital Heart Defects Surveillance Network. Employment was defined as any paid work in a given year. Logistic regression was used to examine patients'' employment status during each year. Results: The registry included 1,208 adult CHD patients with a health care encounter between 2009 and 2013, of whom 1,078 had >= 1 year of data with known employment status. Overall, 401 patients (37\%) were employed in their most recent registry year. On multivariable analysis, the odds of employment decreased with older age and were lower for Black as compared to White patients (odds ratio = 0.78; 95\% confidence interval: 0.62, 0.98; p = 0.030), and single as compared to married patients (odds ratio = 0.50; 95\% confidence interval: 0.39, 0.63; p < 0.001). Conclusion: In a registry where employment status was routinely captured, only 37\% of adult CHD patients aged 18-64 years were employed, with older patients, Black patients, and single patients being less likely to be employed. Further work is needed to consider how enhancing cardiology follow-up for adults with CHD can integrate support for employment.' affiliation: 'Sarno, LA (Corresponding Author), East Carolina Univ, Brody Sch Med, Dept Pediat, Pediat Cardiol, 115 Heart Dr, Greenville, NC 27834 USA. Sarno, Lauren A.; Sang, Charlie J., Jr., East Carolina Univ, Brody Sch Med, Dept Pediat, Pediat Cardiol, 115 Heart Dr, Greenville, NC 27834 USA. Cortright, Lindsay; Stanley, Tiara; Tumin, Dmitry, East Carolina Univ, Brody Sch Med, Dept Pediat, Greenville, NC 27858 USA. Li, Jennifer S., Duke Univ, Sch Med, Dept Pediat, Pediat Cardiol, Durham, NC USA.' article-number: PII S1047951120001572 author: Sarno, Lauren A. and Cortright, Lindsay and Stanley, Tiara and Tumin, Dmitry and Li, Jennifer S. and Sang Jr., Charlie J. author-email: sarnol18@ecu.edu author_list: - family: Sarno given: Lauren A. - family: Cortright given: Lindsay - family: Stanley given: Tiara - family: Tumin given: Dmitry - family: Li given: Jennifer S. - family: Sang Jr. given: Charlie J. da: '2023-09-28' doi: 10.1017/S1047951120001572 eissn: 1467-1107 files: [] issn: 1047-9511 journal: CARDIOLOGY IN THE YOUNG keywords: Predictors; work participation; adults with CHD keywords-plus: 'CONGENITAL HEART-DISEASE; EMPLOYMENT STATUS; TASK-FORCE; OUTCOMES; TRENDS; CARE' language: English month: AUG number: '8' number-of-cited-references: '26' orcid-numbers: 'Sarno, Lauren/0000-0001-5925-8733 Cortright, Lindsay/0000-0002-4990-3804' pages: 1081-1085 papis_id: 33260c0f5ed8d5b29d2c9ea3bb3a861b ref: Sarno2020clinicalsocioeconomi researcherid-numbers: 'Tumin, Dmitry/AAG-6295-2021 ' times-cited: '3' title: Clinical and socio-economic predictors of work participation in adult CHD patients type: article unique-id: WOS:000562473300004 usage-count-last-180-days: '0' usage-count-since-2013: '0' volume: '30' web-of-science-categories: Cardiac \& Cardiovascular Systems; Pediatrics year: '2020'