abstract: 'Chronically ill children require several hours of additional care per

  day compared to healthy children. As parents provide most of this care,

  they have to incorporate it into their daily schedule, which implies a

  reduction in time for other activities. The study aimed to assess the

  effect of having a chronically ill child on parental employment and

  parental leisure activity time, and to explore the role of demographic,

  social, and disease-related variables in relation to employment and

  leisure activities. Outcomes of 576 parents of chronically ill children

  and 441 parents of healthy school children were analyzed with

  multivariate regression. Having a chronically ill child was negatively

  related with family employment, maternal labor force participation, and

  leisure activity time. Use of child care was positively related to

  family and maternal employment of the total group of parents. Within

  parents of chronically ill children, most important finding was the

  negative relation of dependency of the child on daily care and low

  parental educational level with family and maternal employment. In

  conclusion, parents of chronically ill children, mothers in particular,

  are disadvantaged in society probably due to the challenge of combining

  child care with work and leisure time.'
affiliation: 'Grootenhuis, M (Corresponding Author), Emma Childrens Hosp, Acad Med
  Ctr, Pediat Psychosocial Dept, POB 22660, NL-1100 DD Amsterdam, Netherlands.

  Hatzmann, Janneke; Heymans, Hugo; Maurice-Stam, Heleen; Grootenhuis, Martha, Emma
  Childrens Hosp, Acad Med Ctr, NL-1100 DD Amsterdam, Netherlands.

  Peek, Niels, Acad Med Ctr, Amsterdam, Netherlands.'
author: Hatzmann, Janneke and Peek, Niels and Heymans, Hugo and Maurice-Stam, Heleen
  and Grootenhuis, Martha
author-email: m.a.grootenhuis@amc.uva.nl
author_list:
- family: Hatzmann
  given: Janneke
- family: Peek
  given: Niels
- family: Heymans
  given: Hugo
- family: Maurice-Stam
  given: Heleen
- family: Grootenhuis
  given: Martha
da: '2023-09-28'
doi: 10.1177/1367493513496668
eissn: 1741-2889
files: []
issn: 1367-4935
journal: JOURNAL OF CHILD HEALTH CARE
keywords: 'Chronic illness; employment; functional limitation; leisure activity

  time; parents'
keywords-plus: 'HEALTH-CARE NEEDS; FAMILIES EXPERIENCES; DEPENDENT CHILDREN; FINANCIAL

  BURDEN; UNITED-STATES; MENTAL-HEALTH; DISABILITIES; TECHNOLOGY; MOTHERS;

  WORK'
language: English
month: DEC
number: '4'
number-of-cited-references: '32'
orcid-numbers: Peek, Niels/0000-0002-6393-9969
pages: 346-357
papis_id: c6b7c9046d554d7d3e2720e171bfab24
ref: Hatzmann2014consequencescaring
researcherid-numbers: Peek, Niels/AAD-9334-2019
times-cited: '42'
title: 'Consequences of caring for a child with a chronic disease: Employment and
  leisure time of parents'
type: Article
unique-id: WOS:000346024400006
usage-count-last-180-days: '0'
usage-count-since-2013: '19'
volume: '18'
web-of-science-categories: Nursing; Pediatrics
year: '2014'