abstract: 'Background: Due to its labour migration history, Belgium is confronted

  with an increasingly older population of people of Moroccan background

  who have been diagnosed with dementia. These migrants came to the

  country during the labour migration wave of the nineteen-sixties and

  seventies to work in mines and other industries and they are now ageing.

  Yet little is known about how dementia care is provided to this older

  population.

  Objectives: This study explores how dementia care is provided to these

  Moroccan older people with dementia, and what challenges do caregivers

  face in providing care.

  Methods: A qualitative study including 31 informal caregivers of older

  Moroccan migrants with dementia and professional caregivers in the field

  of dementia care in several Belgian cities was conducted. After an

  initial focus group including 6 informal and professional caregivers,

  individual in-depth interviews were held with 12 informal caregivers of

  Moroccan decent and 13 professional caregivers. In order to be included

  in the study, informal caregivers had to have a recent experience in

  caring for an older family member with dementia. The professional

  caregivers had to be active in the field of dementia care (General

  Practitioners, nurses, psychologists,...) and have experience with older

  migrants with dementia.

  Results: Analyses of the collected data reveal that current dementia

  care is a challenging, complex and dynamic search process. This process

  is shaped by (1) multiple factors reflecting the changing care needs of

  the care recipient during the course of the dementia, (2) the individual

  (transnational) recourses of the informal caregivers and the (3) current

  (lack of) accessibility of professional dementia care (driven by the

  absence of an accessible migration-, culture- and religion-sensitive

  professional care). The limited professional service-use is

  predominantly compensated through the search for transnational external

  helpers. The limited migration, cultural and religious sensitivity of

  current dementia care is often overlooked by professional caregivers.

  Conclusion: The study provides a better understanding of the complex

  reality of dementia care for older migrants in which these different

  aspects intersect. This understanding enable health professionals and

  policy makers to develop a better suited care for older migrants with

  dementia. (C) 2019 Elsevier Ltd. All rights reserved.'
affiliation: 'Chaouni, SB (Corresponding Author), Vnje Univ Brussels, Dept Educ Sci,
  Pl Laan 2, B-1050 Brussels, Belgium.

  Chaouni, Saloua Berdai; Smetcoren, An-Sofie; De Donder, Liesbeth, Vnje Univ Brussels,
  Dept Educ Sci, Pl Laan 2, B-1050 Brussels, Belgium.'
article-number: '103413'
author: Chaouni, Saloua Berdai and Smetcoren, An-Sofie and De Donder, Liesbeth
author-email: 'Saloua.Berdai-Chaouni@vub.be

  An-sofie.smetcoren@vub.be

  liesbeth.de.donder@vub.be'
author_list:
- family: Chaouni
  given: Saloua Berdai
- family: Smetcoren
  given: An-Sofie
- family: De Donder
  given: Liesbeth
da: '2023-09-28'
doi: 10.1016/j.ijnurstu.2019.103413
eissn: 1873-491X
files: []
issn: 0020-7489
journal: INTERNATIONAL JOURNAL OF NURSING STUDIES
keywords: 'Caregivers'' perspectives; Dementia care; Informal care; Older migrants;

  Transnational care; Othering'
keywords-plus: 'ETHNIC-MINORITY; HOME-CARE; EXPERIENCES; HEALTH; IMMIGRANTS; SERVICES;

  BARRIERS; ACCESS; LIFE; PERSPECTIVES'
language: English
month: JAN
number-of-cited-references: '65'
orcid-numbers: 'De Donder, Liesbeth/0000-0003-4999-5902

  Berdai Chaouni, Saloua/0000-0002-0455-0144

  Smetcoren, An-Sofie/0000-0002-4581-4898'
papis_id: 3e1328aaf8deb40a8f98c1ffd037eb81
ref: Chaouni2020caringmigrant
researcherid-numbers: 'Smetcoren, An-Sofie/IVV-3325-2023

  '
times-cited: '21'
title: 'Caring for migrant older Moroccans with dementia in Belgium as a complex and
  dynamic transnational network of informal and professional care: A qualitative study'
type: Article
unique-id: WOS:000506722400003
usage-count-last-180-days: '5'
usage-count-since-2013: '21'
volume: '101'
web-of-science-categories: Nursing
year: '2020'