abstract: 'Background: Despite our knowledge of barriers to the early stages of the

  transplant process, we have limited insight into patient-reported

  barriers to the prekidney transplant medical evaluation in populations

  largely at-risk for evaluation failure. Methods: One-hundred consecutive

  adults were enrolled at an urban, Midwestern transplant center.

  Demographic, clinical, and quality of life data were collected prior to

  patients visit with a transplant surgeon/nephrologist (evaluation

  begins). Patient-reported barriers to evaluation completion were

  collected using the Subjective Barriers Questionnaire 90-days after the

  initial medical evaluation appointment (evaluation ends), our center

  targeted goal for transplant work-up completion. Results: At 90 days,

  40\% of participants had not completed the transplant evaluation. Five

  barrier categories were created from the 85 responses to the Subjective

  Barriers Questionnaire. Patient-reported barriers included poor

  communication, physical health, socioeconomics, psychosocial influences,

  and access to care. In addition, determinants for successful evaluation

  completion included being of white race, higher income, free of

  dialysis, a lower comorbid burden, and reporting higher scores on the

  Kidney Disease Quality of Life subscale role-emotional. Conclusion: Poor

  communication between patients and providers, and among providers, was

  the most prominent patient-reported barrier identified. Barriers were

  more prominent in marginalized groups such as ethnic minorities and

  people with low income. Understanding the prevalence of patient-reported

  barriers may aid in the development of patient-centered interventions to

  improve completion rates.'
affiliation: 'Lockwood, MB (Corresponding Author), Univ Illinois, Coll Nursing, Room
  658,845 S Damen Ave, Chicago, IL 60612 USA.

  Lockwood, Mark B., Univ Illinois, Coll Nursing, Dept Biobehav Sci, Chicago, IL 60680
  USA.

  Saunders, Milda R., Univ Chicago Med, Hosp Med, Chicago, IL USA.

  Saunders, Milda R., MacLean Ctr Clin Med Eth, Chicago, IL USA.

  Nass, Rachel; Cunningham, Patrick N.; Josephson, Michelle A., Univ Chicago Med,
  Dept Med, Chicago, IL USA.

  McGivern, Claire L.; Becker, Yolanda T., Univ Chicago Med, Dept Surg, Chicago, IL
  USA.

  Chon, W. James, Univ Arkansas Med Sci, Dept Med, Little Rock, AR 72205 USA.

  Lee, Christopher S., Oregon Hlth \& Sci Univ, Sch Nursing, Portland, OR 97201 USA.'
author: Lockwood, Mark B. and Saunders, Milda R. and Nass, Rachel and McGivern, Claire
  L. and Cunningham, Patrick N. and Chon, W. James and Josephson, Michelle A. and
  Becker, Yolanda T. and Lee, Christopher S.
author-email: lockmar@uic.edu
author_list:
- family: Lockwood
  given: Mark B.
- family: Saunders
  given: Milda R.
- family: Nass
  given: Rachel
- family: McGivern
  given: Claire L.
- family: Cunningham
  given: Patrick N.
- family: Chon
  given: W. James
- family: Josephson
  given: Michelle A.
- family: Becker
  given: Yolanda T.
- family: Lee
  given: Christopher S.
da: '2023-09-28'
doi: 10.1177/1526924817699957
eissn: 2164-6708
files: []
issn: 1526-9248
journal: PROGRESS IN TRANSPLANTATION
keywords: inequities; barriers; transplant; evaluation; kidney
keywords-plus: 'KIDNEY-TRANSPLANT; RACIAL DISPARITIES; COMPLETION; DIALYSIS; RACE;

  DECISION; IMPACT; DONOR; STEPS; TIME'
language: English
month: JUN
number: '2'
number-of-cited-references: '29'
orcid-numbers: 'Chon, Woojin James/0000-0002-3167-8549

  Lockwood, Mark/0000-0003-2534-8583

  Lee, Christopher/0000-0002-2510-4071'
pages: 131-138
papis_id: 928f5880a7fec7231a3b91173a6aa9c4
ref: Lockwood2017patientreportedbarri
researcherid-numbers: 'Chon, Woojin James/F-4684-2010

  '
times-cited: '18'
title: Patient-Reported Barriers to the Prekidney Transplant Evaluation in an At-Risk
  Population in the United States
type: Article
unique-id: WOS:000401799700004
usage-count-last-180-days: '0'
usage-count-since-2013: '4'
volume: '27'
web-of-science-categories: Surgery; Transplantation
year: '2017'