abstract: 'Objective: To explore generalist palliative care providers'' experiences

  of emotional labour when undertaking conversations around palliative and

  end-of-life care with patients and families, to inform supportive

  strategies.

  Methods: Semi-structured interviews conducted with generalist staff

  (those providing `primary'' or `general'' palliative care, not palliative

  care specialists) who had attended a communication workshop. Sampling

  was purposive (by gender, profession, experience). Data were analysed

  using a framework approach; a sample of transcripts were double-coded

  for rigour. Data collection and analysis were informed by theories of

  emotional labour, coping, and communication.

  Results: Four ambulance staff, three nurses, two speech and language

  therapists, and one therapy assistant were interviewed. Five themes

  emerged: emotions experienced; emotion `display rules''; emotion

  management; support needs; and perceived impact of emotional labour.

  Participants reported balancing `human'' and `professional'' expressions

  of emotion. Support needs included time for emotion management,

  workplace cultures that normalise emotional experiences, formal

  emotional support, and palliative and end-of-life care skills training.

  Conclusion: Diverse strategies to support the emotional needs of

  generalist staff are crucial to ensure high-quality end-of-life care and

  communication, and to support staff well-being.

  Practice implications: Both formal and informal support is required,

  alongside skills training, to enable a supportive workplace culture and

  individual development. (C) 2018 Elsevier B.V. All rights reserved.'
affiliation: 'Brighton, LJ (Corresponding Author), Kings Coll London, Cicely Saunders
  Inst Palliat Care Policy \& Rehabi, Bessemer Rd, London SE5 9PJ, England.

  Brighton, Lisa Jane; Bristowe, Katherine; Edwards, Beth; Koffman, Jonathan; Evans,
  Catherine J., Kings Coll London, Cicely Saunders Inst Palliat Care Policy \& Rehabi,
  Bessemer Rd, London SE5 9PJ, England.

  Selman, Lucy Ellen, Univ Bristol, Bristol Med Sch, Populat Hlth Sci, Bristol, Avon,
  England.

  Evans, Catherine J., Brighton Gen Hosp, Sussex Community NHS Fdn Trust, Brighton,
  E Sussex, England.'
author: Brighton, Lisa Jane and Selman, Lucy Ellen and Bristowe, Katherine and Edwards,
  Beth and Koffman, Jonathan and Evans, Catherine J.
author-email: 'lisa.brighton@kcl.ac.uk

  lucy.selman@bristol.ac.uk

  katherine.bristowe@kcl.ac.uk

  bethany.edwards@kcl.ac.uk

  jonathan.koffman@kcl.ac.uk

  catherine.evans@kcl.ac.uk'
author_list:
- family: Brighton
  given: Lisa Jane
- family: Selman
  given: Lucy Ellen
- family: Bristowe
  given: Katherine
- family: Edwards
  given: Beth
- family: Koffman
  given: Jonathan
- family: Evans
  given: Catherine J.
da: '2023-09-28'
doi: 10.1016/j.pec.2018.10.013
eissn: 1873-5134
files: []
issn: 0738-3991
journal: PATIENT EDUCATION AND COUNSELING
keywords: 'Emotions; Communication; Education; Terminal care; Palliative care;

  Qualitative research'
keywords-plus: 'CANCER CARE; STRESSORS; INTERVENTIONS; PERSPECTIVES; STRATEGIES;

  BARRIERS; EFFICACY; BURNOUT; SKILLS; WORK'
language: English
month: MAR
number: '3'
number-of-cited-references: '66'
orcid-numbers: 'Evans, Catherine J/0000-0003-0034-7402

  Brighton, Lisa J/0000-0003-0516-0102

  Brighton, Lisa Jane/0000-0003-0516-0102

  Selman, Lucy/0000-0001-5747-2699

  Edwards, Beth/0000-0001-7742-4432

  Koffman, Jonathan/0000-0001-8513-5681

  Bristowe, Katherine Rachel/0000-0003-1809-217X'
pages: 494-502
papis_id: 37a9e18b66f164d8a0906da441f4a81d
ref: Brighton2019emotionallabour
researcherid-numbers: 'Evans, Catherine J/AAS-4121-2020

  Bristowe, Katherine R/G-4807-2012

  Brighton, Lisa J/M-1632-2014

  Brighton, Lisa Jane/AAF-9119-2019

  Selman, Lucy/C-4373-2014

  '
times-cited: '27'
title: 'Emotional labour in palliative and end-of-life care communication: A qualitative
  study with generalist palliative care providers'
type: Article
unique-id: WOS:000461039100013
usage-count-last-180-days: '0'
usage-count-since-2013: '39'
volume: '102'
web-of-science-categories: 'Public, Environmental \& Occupational Health; Social Sciences,

  Interdisciplinary'
year: '2019'