abstract: 'Measuring the impact burn injuries have on social participation is

  integral to understanding and improving survivors'' quality of life, yet

  there are no existing instruments that comprehensively measure the

  social participation of burn survivors. This project aimed to develop

  the Life Impact Burn Recovery Evaluation Profile (LIBRE), a

  patient-reported multidimensional assessment for understanding the

  social participation after burn injuries.

  192 questions representing multiple social participation areas were

  administered to a convenience sample of 601 burn survivors. Exploratory

  factor analysis and confirmatory factor analysis (CFA) were used to

  identify the underlying structure of the data. Using item response

  theory methods, a Graded Response Model was applied for each identified

  sub-domain. The resultant multidimensional LIBRE Profile can be

  administered via Computerized Adaptive Testing (CAT) or fixed short

  forms.

  The study sample included 54.7\% women with a mean age of 44.6 (SD 15.9)

  years. The average time since burn injury was 15.4 years (0-74 years)

  and the average total body surface area burned was 40\% (1-97\%). The

  CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI

  range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional

  scales were named: relationships with family and friends, social

  interactions, social activities, work and employment, romantic

  relationships, and sexual relationships. The marginal reliability of the

  full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects

  less than 15\% for all scales.

  The LIBRE Profile is a promising new measure of social participation

  following a burn injury that enables burn survivors and their care

  providers to measure social participation.'
affiliation: 'Marino, M (Corresponding Author), Boston Univ, Sch Publ Hlth, Hlth \&
  Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.

  Kazis, Lewis E.; Bori, Marina Soley; Amaya, Flor; Dore, Emily, Boston Univ, Sch
  Publ Hlth, CAPP, Dept Hlth Law Policy \& Management, Boston, MA USA.

  Marino, Molly; Ni, Pengsheng; Jette, Alan M., Boston Univ, Sch Publ Hlth, Hlth \&
  Disabil Res Inst, 715 Albany St,T5W, Boston, MA 02118 USA.

  Ryan, Colleen M., Massachusetts Gen Hosp, Dept Surg, Boston, MA 02114 USA.

  Ryan, Colleen M.; Schneider, Jeff C., Harvard Med Sch, Boston, MA USA.

  Ryan, Colleen M., Shriners Hosp Children Boston, Boston, MA USA.

  Schneider, Jeff C.; Shie, Vivian, Spaulding Rehabil Hosp, Dept Phys Med \& Rehabil,
  Boston, MA USA.

  Acton, Amy, Phoenix Soc Burn Survivors, Grand Rapids, MI USA.'
author: Kazis, Lewis E. and Marino, Molly and Ni, Pengsheng and Bori, Marina Soley
  and Amaya, Flor and Dore, Emily and Ryan, Colleen M. and Schneider, Jeff C. and
  Shie, Vivian and Acton, Amy and Jette, Alan M.
author-email: memarino@bu.edu
author_list:
- family: Kazis
  given: Lewis E.
- family: Marino
  given: Molly
- family: Ni
  given: Pengsheng
- family: Bori
  given: Marina Soley
- family: Amaya
  given: Flor
- family: Dore
  given: Emily
- family: Ryan
  given: Colleen M.
- family: Schneider
  given: Jeff C.
- family: Shie
  given: Vivian
- family: Acton
  given: Amy
- family: Jette
  given: Alan M.
da: '2023-09-28'
doi: 10.1007/s11136-017-1588-3
eissn: 1573-2649
files: []
issn: 0962-9343
journal: QUALITY OF LIFE RESEARCH
keywords: 'Item response theory; Computerized adaptive test; Burns; Social

  reintegration'
keywords-plus: 'ITEM RESPONSE THEORY; QUALITY-OF-LIFE; OUTCOMES MEASUREMENT;

  HEALTH-STATUS; INJURY; ADJUSTMENT; RETURN; WORK; BARRIERS; TIME'
language: English
month: OCT
number: '10'
number-of-cited-references: '47'
orcid-numbers: 'Marino, Molly/0000-0002-9978-3038

  Soley-Bori, Marina/0000-0002-8348-3575

  Ryan, Colleen/0000-0002-6455-936X'
pages: 2851-2866
papis_id: 66f0f253787a851747a8033d5e4eed25
ref: Kazis2017developmentlife
researcherid-numbers: 'Baldissera, Annalisa/AHD-6334-2022

  '
times-cited: '28'
title: 'Development of the life impact burn recovery evaluation (LIBRE) profile: assessing
  burn survivors'' social participation'
type: article
unique-id: WOS:000410904700023
usage-count-last-180-days: '0'
usage-count-since-2013: '3'
volume: '26'
web-of-science-categories: 'Health Care Sciences \& Services; Health Policy \& Services;
  Public,

  Environmental \& Occupational Health'
year: '2017'